Blood Cancers & Disorders Support Group

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Comment

Hi @loribmt That was a very good video. I think doctors have a hard time telling...

https://connect.mayoclinic.org/comment/1369265/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Comment

Hi @carolannt, if you would like to get a second opinion at Mayo Clinic, you can...

https://connect.mayoclinic.org/comment/963448/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Comment

I have myelofibrosis and have been on 10 mg Jakafi for several years. I have found...

https://connect.mayoclinic.org/comment/1379270/

Discussion: Does anyone with Myelofibrosis suffer musscle spasm?

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2025

Comment

Hi nohrt4me, Thank you for posting. I totally agree with you that we have to work...

https://connect.mayoclinic.org/comment/1313253/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Comment

@hughp Thank you for sharing your story about your diagnosis with PMF (primary myelofibrosis). It can...

https://connect.mayoclinic.org/comment/1529843/

Discussion: Hydroxyurea and any drug interactions?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 11:24am

Comment

Amanda-I am 74 & was diagnosed with myelofibrosis in 2016. Just interested in overall discussions of...

https://connect.mayoclinic.org/comment/674388/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Comment

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

Comment

I had terrible thorax itching. Xanax stops it fast!!! And my itching was more than likely...

https://connect.mayoclinic.org/comment/905705/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2023

Comment

I guess it depends on the hematologist/oncologist’s experience. I was never offered the option - I...

https://connect.mayoclinic.org/comment/877816/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Comment

Thank you @1pearl It seems like of the blood disorders with Myelofibrosis there are different versions....

https://connect.mayoclinic.org/comment/1348784/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025