Blood Cancers & Disorders Support Group

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Comment

Hello @derikburger and welcome to Mayo Clinic Connect. It sounds like you may have been diagnosed...

https://connect.mayoclinic.org/comment/674287/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Comment

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Comment

There is a Facebook group called Myelofibrosis Support Group with almost 2000 members. If you don’t...

https://connect.mayoclinic.org/comment/1244466/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 10:21am

Comment

Hello @susanvij, Teresa, @hopeful33250 has provided some great information, and I would also encourage you to...

https://connect.mayoclinic.org/comment/50515/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2017

Comment

My husband was diagnosed with myelofibrosis a month ago. He has had 6 platelet transfusions. His...

https://connect.mayoclinic.org/comment/1250056/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 7:48am

Comment

Hi, in this video, it is not clear what new drug or treatment this Doctor is...

https://connect.mayoclinic.org/comment/1256699/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 13 6:12am

Comment

I'm just starting on Jakafi and am anxious about the side effects and the necessity of...

https://connect.mayoclinic.org/comment/1381817/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 29 8:56am

Comment

Hi @raglus, I'm tagging @scottmatteo to make sure he sees your question about dietary changes. Have...

https://connect.mayoclinic.org/comment/859309/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Comment

Welcome @iis. Are you asking whether the Jak2 mutation is hereditary? Here's more information that you...

https://connect.mayoclinic.org/comment/811076/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

Comment

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022