Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

75 total results

Comment

Hi @lav3, @mll and @josettecedo, I've moved your messages to this existing discussion group on mycosis...

https://connect.mayoclinic.org/comment/1163147/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Comment

Hi @topeydane. Well, darn it. It must feel like a gut punch after so many years...

https://connect.mayoclinic.org/comment/1026976/

Discussion: Post stem cell transplant (SCT) relapse after 12 years

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 3, 2024

Comment

I am not sure about the diagnosis because it is made by cell type. It seems...

https://connect.mayoclinic.org/comment/1013043/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2024

Comment

Hi Josette. I have had CTCL - MF. Treatment depends on the stage of your disease....

https://connect.mayoclinic.org/comment/1163170/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Comment

Nice reply, norseman44, and thanks for contributing so quickly. Pual, please see: "...What is the prognosis...

https://connect.mayoclinic.org/comment/1108408/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024

Comment

Hi @mrb2491 While you’re waiting for a reply from @cindylb I just wanted to welcome you...

https://connect.mayoclinic.org/comment/1523965/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:05pm

Comment

I am a 58yr old male that was diagnosed wit CTCL last June. This after many...

https://connect.mayoclinic.org/comment/1078425/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2024

Comment

Hey, we recently got a home lite box thru our insurance company with the help of...

https://connect.mayoclinic.org/comment/1295325/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: May 2, 2025

Comment

@shari715 do you use a chemo cream with your light box? My son is seeing his...

https://connect.mayoclinic.org/comment/958376/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

Comment

I was diagnosed with Cutaneous T-Cell lymphoma by my dermatologist. My excellent dermatologist noticed an area...

https://connect.mayoclinic.org/comment/850787/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023

1
…
4
5
6
7
8