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Blood Cancers & Disorders Support Group

Public Support Group
822 total results
Discussion
Vitamins and supplements: Have any been helpful for people with CLL?
I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.
Last active: Jan 21, 2024
Discussion
Had CLL for about 2 years, Dr is now thinking of treatment
I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...
Last active: Aug 9, 2023
Discussion
Using pulsating electro-magnetic fields as an adjunct in treating CLL
I currently have unmutated IGHV trisomy 12 with 11q deletion. I was diagnosed in 2012 and have going to Mayo Clinic in Rochester. At the...
Last active: Dec 18, 2018
Discussion
Had CLL since 1996 & Now NETs-Anyone Else?
I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...
Last active: Aug 27, 2023
Discussion
Is possible to know how long ago I got CLL?
I am newly diagnosed with CLL. I am wondering if it is possible to get an idea of how long I have had this. I...
Last active: Jun 26, 2024
Discussion
Any ideas on how long someone lives with CLL / SLL?
At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...
Last active: Jan 1, 2024
Discussion
With CLL what to do about night sweats and dry mouth?
I am not getting treatment. Its "wait and watch." What can I do about the nightly sweats? Thanks
Last active: Jul 1, 2024
Discussion
I have CLL , CML and now diagnosed with Multiple Myeloma: Discouraged
I have CLL , CML, and last night I was just diagnosed with multiple myeloma how many forms of cancer can one person have? I...
Last active: Jun 6 3:41pm
Discussion
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related...
Last active: Apr 15, 2023
Discussion
What are the best treatment for CLL? Is CAR T cell therapy an option?
[July 30, 2021 1:43 P.M.]I don't need treatment right now, fortunately. I've been in remission for over 5 years. Would you say that treatment for...
Last active: Oct 19, 2024