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Blood Cancers & Disorders Support Group

Public Support Group
706 total results
Discussion
Any ideas on how long someone lives with CLL / SLL?
At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...
Last active: Jan 1, 2024
Discussion
With CLL what to do about night sweats and dry mouth?
I am not getting treatment. Its "wait and watch." What can I do about the nightly sweats? Thanks
Last active: Jul 1, 2024
Discussion
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related...
Last active: Apr 15, 2023
Discussion
What are the best treatment for CLL? Is CAR T cell therapy an option?
[July 30, 2021 1:43 P.M.]I don't need treatment right now, fortunately. I've been in remission for over 5 years. Would you say that treatment for...
Last active: Oct 19, 2024
Discussion
Chronic lymphocytic leukemia (CLL): How do you manage side effects?
I have CLL and am having problems with my legs. Numbness and tingling, very weak knees and some pain at times. Acetaminophen takes care of...
Last active: Nov 16, 2022
Discussion
CLL: How do you evaluate well-meaning tips from friends?
Me again.An old friend of mine who is very into holistic therapies and such sent me an article about Rick Simpson Oil. Has anyone heard...
Last active: Mar 23, 2024
Discussion
Does CLL cause minor daily fevers of maybe 1 or 2 degrees?
I was diagnosed with CLL in April 2024 so I have many questions. I have noticed the lymph nodes in my armpits and under my...
Last active: Jun 27, 2024
Discussion
Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive
I just want to tell my story about CLL. I was diagnosed in December 2012 with it and my son found your report on a...
Last active: Aug 12, 2024
Discussion
Chronic Lymphocytic Leukemia: Anyone else in remission?
I have CLL. I had 5 chemo treatments which ended 13 months-ago, and so far, I'm still in remission. Has anyone else here been in...
Last active: Jun 15, 2024
Discussion
Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy
I am trying to find someone who is dealing with the same issues I have. I was diagnosed in 2000 with Hereditary Nerve Pressure Palsy,...
Last active: May 19, 2024