Blood Cancers & Disorders Support Group

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Comment

@baygirl80 I was on Jakafi for 8-9 years before my ET converted to secondary myelofibrosis. In...

https://connect.mayoclinic.org/comment/1445447/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025

Comment

Hi @jerrlin. While you’re waiting for others on Jakafi to respond, I read through the information...

https://connect.mayoclinic.org/comment/1200917/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

Comment

I hope your doctor will be able to come up with a treatment plan! I have...

https://connect.mayoclinic.org/comment/640974/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 1, 2021

Comment

@tamijulien Can you summarize your experience? I am hoping that you have had a successful treatment...

https://connect.mayoclinic.org/comment/1518102/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 5:49pm

Comment

I was diagnosed with ET in 2019. I have only been taking an aspirin a day....

https://connect.mayoclinic.org/comment/1523256/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 9 12:20pm

Comment

@dl69, a diagnosis does blindside you, doesn't it? How are doing on Jakafi?

https://connect.mayoclinic.org/comment/1272870/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Comment

I was recently diagnosed. I am 55 and starting Jakafi. I'm feeling ok just blindsided by...

https://connect.mayoclinic.org/comment/1264002/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

Comment

Is Jakafi covered by Medicare? What is the cost for a monthly dosage? Thanks.

https://connect.mayoclinic.org/comment/1013450/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

Comment

I have no side effects using Jakafi BUT do not know if is effective

https://connect.mayoclinic.org/comment/854657/

Discussion: Does Acupuncture help low back pain caused by multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2023

Comment

I am 83 and have been taking Jakafi for five years

https://connect.mayoclinic.org/comment/1124167/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2024