Blood Cancers & Disorders Support Group

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Comment

Hi @taisaint, You’re absolutely in the right section…no worries. ☺️. You have a great daughter who...

https://connect.mayoclinic.org/comment/968475/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2023

Comment

Has anybody experienced being lightheaded/fainting, vomiting and sweating? It happened the second time to me yesterday....

https://connect.mayoclinic.org/comment/1519111/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 6:12am

Comment

Thanks. It's helpful to hear your experience. Did your platelets stay stable over time and then...

https://connect.mayoclinic.org/comment/943016/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Comment

I was just diagnosed with Jak2/ET and had a bone marrow biopsy that ruled out other...

https://connect.mayoclinic.org/comment/1193558/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Comment

Hmm, I think @1pearl mentioned that her platelet levels are dropping without meds and that she...

https://connect.mayoclinic.org/comment/1248005/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

Comment

I am jak2 positive. On a low dose of Asa and Hydroxurea x 3 years. I...

https://connect.mayoclinic.org/comment/957213/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

Comment

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087422/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Comment

From my understanding PV doesn’t run in families. It’s usually caused by an acquired mutation in...

https://connect.mayoclinic.org/comment/1239444/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2025

Comment

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

I was diagnosed with the same jak2 positive and my platelets are in the 500’s. Hydro...

https://connect.mayoclinic.org/comment/929131/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023