Blood Cancers & Disorders Support Group

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Comment

Your "acceptable" number may vary depending on age, clot history, and driver mutation. If you are...

https://connect.mayoclinic.org/comment/1134086/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2024

Comment

Hi there I'm Jola 67 I have just been diagnosed with ET JAK2 have just started...

https://connect.mayoclinic.org/comment/887506/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

Comment

Thank you for responding…after about a month of fighting with h the insurance company to approve...

https://connect.mayoclinic.org/comment/886301/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Comment

I think in the United States some insurance companies make you do step therapy…hydroxyurea first before...

https://connect.mayoclinic.org/comment/790422/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

Comment

@ettap , Great comment. Most importantly, because it pertains to me, as well!(!) Anyway, I have...

https://connect.mayoclinic.org/comment/652790/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2021

Comment

When they do the bone marrow (BM) procedure they should do a molecular panel which looks...

https://connect.mayoclinic.org/comment/328591/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Comment

I am suspecting I'll be soon officially diagnosed with PV. I'm JAK2 and blood numbers trending...

https://connect.mayoclinic.org/comment/193900/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2019

Comment

I am 77 and was recently diagnosed with JAK2 ET in September of this year and...

https://connect.mayoclinic.org/comment/777821/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Comment

I was diagnosed with ET and was referred to the Mayo Clinic in Arizona. After a...

https://connect.mayoclinic.org/comment/1327678/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 15 11:10am

Comment

We’ve been monitoring my platelets for 11 years. They are always above the normal of 450....

https://connect.mayoclinic.org/comment/1319552/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jun 3 3:26pm