Blood Cancers & Disorders Support Group

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Comment

I take Desloratadine, an antihistamine for the itching and it works great. For dry skin on...

https://connect.mayoclinic.org/comment/1205154/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 9:14am

Comment

Patty, when my platelet count rose slowly & steadily over several years I was very worried...

https://connect.mayoclinic.org/comment/1063989/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2024

Comment

Welcome @jak2mpnpositive, allow me to tag other members like @claire39 @bluegrasspv2018 @jam5 @dwlowrance @levieta @lzimmerman @mpt77...

https://connect.mayoclinic.org/comment/686214/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2022

Comment

Hi @taisaint, All of this information can be found in National Institute of Health, Pub Med...

https://connect.mayoclinic.org/comment/1023272/

Discussion: Contolling Hydroxyurea fatigue by time of day you take the medication

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Comment

I was diagnosed with ET Jak2 in 2021, my platelets went over 1,000, with HU and...

https://connect.mayoclinic.org/comment/930012/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

Comment

My functional medicine doc has me taking 10,000 IU Vit D daily to keep my levels...

https://connect.mayoclinic.org/comment/845564/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

Hi Lynn. I was having tingling and numbness in my lips. It felt weird when I...

https://connect.mayoclinic.org/comment/839738/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2023

Comment

Hello. I'm 62 and was diagnosed a month ago with Jak2 and ET. Had my bone...

https://connect.mayoclinic.org/comment/774273/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

Comment

I am 77 and was recently diagnosed with JAK2 ET in September of this year and...

https://connect.mayoclinic.org/comment/777821/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Comment

Sorry for rambling, but by sharing my experience I hope to provide some insight and respond...

https://connect.mayoclinic.org/comment/684686/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022