Blood Cancers & Disorders Support Group

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Comment

What dietary changes did you make to help with myleofibrosis?

https://connect.mayoclinic.org/comment/854017/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Comment

@davi0937 Wondering if you found a group specific to mylofibrosis. I too was diagnosed this June...

https://connect.mayoclinic.org/comment/1431943/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

Comment

My platelets were 1.4 million in June 2025. My new oncologist at Virginia Cancer Institute performed...

https://connect.mayoclinic.org/comment/1422367/

Discussion: Seeking opinion about where to get a second opinion.

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

Comment

with platelets that high your very lucky you didnt have a clot form, TIA or even...

https://connect.mayoclinic.org/comment/1404569/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2025

Comment

Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...

https://connect.mayoclinic.org/comment/1299114/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2025

Comment

I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I...

https://connect.mayoclinic.org/comment/1275379/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2025

Comment

Oh thank you so much🙏. Wow 13 biopsies,What a great fierce fighter you are !❤️ Yeah...

https://connect.mayoclinic.org/comment/1022596/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Comment

Thanks for sharing your story I was diagnosed at 39 and was put on HU and...

https://connect.mayoclinic.org/comment/1354755/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2025

Comment

I was very hesitant to begin taking hydroxyurea when I was diagnosed with ET. At my...

https://connect.mayoclinic.org/comment/1277310/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

Comment

I am sorry that you are not doing well . I have myelofibtosis and still on...

https://connect.mayoclinic.org/comment/1251826/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025