Blood Cancers & Disorders Support Group

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Comment

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2025

Comment

Hi @mkt24 There are several discussions about cancer of the blood in this Blood Cancer and...

https://connect.mayoclinic.org/comment/1071669/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

Comment

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

Hi Linda, There are several types of hormone-like substances that stimulate bone marrow to produce blood...

https://connect.mayoclinic.org/comment/1475032/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 5 10:49am

Comment

Pixiesusan, so good to hear back from you. My first bone biopsy in Oct. of 21...

https://connect.mayoclinic.org/comment/1151293/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

Comment

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

Comment

I was recently diagnosed with MDS with anemia. I have been anemic for many years but...

https://connect.mayoclinic.org/comment/1363855/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

Comment

Thank you so much for your kind reply. I will check out the link you provided....

https://connect.mayoclinic.org/comment/1418830/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

Comment

Hi Joyce, Welcome to Mayo Connect and thank you for sharing your experience with Myelodyplastic 5q...

https://connect.mayoclinic.org/comment/1380440/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2025

Comment

My husbands blasts in the blood were at 2% for several months, then went to 16%...

https://connect.mayoclinic.org/comment/1294674/

Discussion: Newly diagnosed with AML (FTL3 TKD)

Support Group: Blood Cancers & Disorders

Posted: May 2, 2025