Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,474 total results

Comment

I also have JAK2. I was told that I could live a normal life. I have...

https://connect.mayoclinic.org/comment/956978/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2023

Comment

Agreed! I found out last fall that I have ET and the Jak2 mutation. BMB was...

https://connect.mayoclinic.org/comment/840900/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Comment

I was diagnosed with ET Jak2 in November 2022. I am on 1000mg Hydroxuria per day,...

https://connect.mayoclinic.org/comment/1516923/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 6:47am

Comment

It seems that different people need different doses. What you're doing is working for you --...

https://connect.mayoclinic.org/comment/1047264/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Comment

My daughter was recently diagnosed with JAK2. She has had two iron treatments and has another...

https://connect.mayoclinic.org/comment/328577/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

Comment

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

Comment

Some people are just advised to take a low dose aspirin for protection against clots. Great...

https://connect.mayoclinic.org/comment/773808/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

Comment

Hi @mgrimes5, I's like to welcome you to Mayo Clinic Connect. You came to the right...

https://connect.mayoclinic.org/comment/325699/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Oct 22, 2020

Comment

Thank you for info. My son does have a hematologist and has been checked for Jak2....

https://connect.mayoclinic.org/comment/252018/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2019

Comment

@daelitesmom I have ET with the JAK2 mutation and suffered from monthly migraines after having them...

https://connect.mayoclinic.org/comment/1474859/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Jan 5 7:46am