Blood Cancers & Disorders Support Group

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Comment

Yes, but I itch random times of the day. It’s really frustrating. I find antihistamines help...

https://connect.mayoclinic.org/comment/1088958/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Comment

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

Comment

I have been living with this condition now for over 10 years. It is progressively worse...

https://connect.mayoclinic.org/comment/1011986/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Comment

Thank you. We have been to three dermatologist, oncologist, allergist, now heading to hematologist. No medications...

https://connect.mayoclinic.org/comment/993409/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Comment

I usually itch right after my bath, I use dove soap and will use various oils...

https://connect.mayoclinic.org/comment/946592/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

Comment

I’m going on two years now on hydroxyurea (500mg) with pretty much no side effects except...

https://connect.mayoclinic.org/comment/940886/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Comment

Hi all! Brand new MGUS IgA here, with severe neuropathic foot itch (bottom balls of feet)...

https://connect.mayoclinic.org/comment/931576/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2023

Comment

Just wondering about intense itchiness along with all the other things? It happens mostly at night...

https://connect.mayoclinic.org/comment/906937/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

Comment

After I was diagnosed with Cutaneous T Cell Lymphoma, Mycosis Fungoides in November 2022, my dermatologist...

https://connect.mayoclinic.org/comment/1098081/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

Comment

@remainanonymous Welcome to Connect. Neuropathy is a frequent topic among the MGUS members so there is...

https://connect.mayoclinic.org/comment/1051082/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024