Blood Cancers & Disorders Support Group

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Comment

Thanks for your reply. The doctor suspects MDS but I also have CIPO and Sjogren's and...

https://connect.mayoclinic.org/comment/274263/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

Comment

Hi @pathilt. Welcome to Mayo Connect! Myelodyplastic Syndromes or MDS are a group of bone marrow...

https://connect.mayoclinic.org/comment/1111910/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

Diagnosed with "MDS" Aug of 2024...I have been getting the Retacrit injection weekly to generate more...

https://connect.mayoclinic.org/comment/1176999/

Discussion: Retacrit + Venofer for B-thalassemia

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

Comment

She is healing well. Still has balance and vision issues but she is functional. I have...

https://connect.mayoclinic.org/comment/1195416/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Comment

I agree with this prognosis....my MDS is in remission of AML with no blasts. After 8...

https://connect.mayoclinic.org/comment/1171862/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Comment

I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in...

https://connect.mayoclinic.org/comment/951872/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

Comment

I think it is very individual. I was having IvIg (for another reason) at least a...

https://connect.mayoclinic.org/comment/1394790/

Discussion: Family member newly diagnosed with MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2025

Comment

@lindamarf, I hope you saw the helpful reply from @marco88 (Lee) about transfusion and risk of...

https://connect.mayoclinic.org/comment/1231549/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

Comment

@ikampel2 managing a chronic illness is challenging enough, but to be without support from friends and...

https://connect.mayoclinic.org/comment/94438/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2016

Comment

Hi! I am impressed you have been on "Watch and Wait" for so many years. Revlamid...

https://connect.mayoclinic.org/comment/1080342/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024