Blood Cancers & Disorders Support Group

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Comment

I don’t have answers, just prayers. But I do have experience with my husband and compression...

https://connect.mayoclinic.org/comment/264600/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2019

Comment

Hello Bob, I would think that a hematologist/oncologist would be the definitive expert for you. MGUS...

https://connect.mayoclinic.org/comment/895672/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

Problem with amyloidosis is it is hard to diagnosis because so many other diseases have same...

https://connect.mayoclinic.org/comment/1470411/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

Comment

Here’s a study she references. I’ve pasted the conclusion part related to MM. My personal deduction...

https://connect.mayoclinic.org/comment/1312559/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Comment

Good morning @dkandalec. Thank you for sharing your positive story with taking the Revlimid and steroids...

https://connect.mayoclinic.org/comment/754406/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

Comment

Welcome, Dianne! I don’t have much I can add to what Ginger shared. I think after...

https://connect.mayoclinic.org/comment/842935/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Comment

First of all, your physicians are being cautious and checking everything! That’s good. The “normal” range...

https://connect.mayoclinic.org/comment/1062338/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Comment

My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda,...

https://connect.mayoclinic.org/comment/898854/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Comment

@tmcclint92 Is your doctor a hematologist oncologist? If not, can you be referred to one? I...

https://connect.mayoclinic.org/comment/1049629/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

Comment

I didn’t have any problems with side effects the entire time I was on it except...

https://connect.mayoclinic.org/comment/1407750/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025