Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with MDS-IB2 on April 11, 2024. I signed a consent form to begin...

https://connect.mayoclinic.org/comment/1063768/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2024

Comment

My husband also has mDS. He was considered mild but his levels are very low(platelets 24)...

https://connect.mayoclinic.org/comment/1053717/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Comment

Please get you a good hematologist and then if any unusual symptoms come up you should...

https://connect.mayoclinic.org/comment/888019/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

Comment

Hi @eibsee1948, Welcome to Connect. My goodness, you have a platelet level of 3? That’s dangerously...

https://connect.mayoclinic.org/comment/758584/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2022

Comment

Very well said! The retacrit (was taking Procrit) has actually helped all blood count numbers including...

https://connect.mayoclinic.org/comment/1308480/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: May 20 10:23am

Comment

Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...

https://connect.mayoclinic.org/comment/1043541/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

Comment

I have MDS/MPN overlap with Thrombocytosis and MF and I've been on Hydrea to reduce my...

https://connect.mayoclinic.org/comment/146301/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2020

Comment

All I can say is that I was never treated for CLL, My CLL turned into...

https://connect.mayoclinic.org/comment/101825/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

Comment

Oh my goodness, I read through the last 1.5 months. What journeys we are on. I...

https://connect.mayoclinic.org/comment/1300827/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 9 11:20pm

Comment

I told my Oncologist that I would not go through a stem cell transplant after 80....

https://connect.mayoclinic.org/comment/870265/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023