Blood Cancers & Disorders Support Group

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Comment

In the beginning I had just phlebotomes ever week and each time it got longer and...

https://connect.mayoclinic.org/comment/1240592/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

Comment

I was 2 years on hydroxyurea and then told to go on jakifi. Felt reL good...

https://connect.mayoclinic.org/comment/1124084/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2024

Comment

I have been on jakifi 25mg 2x per day for past 5 months with no side...

https://connect.mayoclinic.org/comment/1066946/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Comment

Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...

https://connect.mayoclinic.org/comment/1062089/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Comment

Hola, @vivoconte I moved your post to this discussion group: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/825716/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2023

Comment

I am a 68 yr old, originally diagnosed with ET in late 2017. After a Bone...

https://connect.mayoclinic.org/comment/57947/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2020

Comment

Hi so sorry to hear that you are having problems. I have been on Jakfi for...

https://connect.mayoclinic.org/comment/1447454/

Discussion: JAKAFI anyone! I've been on it for 5 years

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2025

Comment

Been on Jakfi for 3 1/2 years. I have MF. Started out at 15 ml at...

https://connect.mayoclinic.org/comment/1442923/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

Comment

I lost alot of hair with hydroxyurea when I first started taking it.Then it slowed down...

https://connect.mayoclinic.org/comment/1244468/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

Comment

Has anyone one been on Jakifi for more then 3 years.

https://connect.mayoclinic.org/comment/1089065/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024