Blood Cancers & Disorders Support Group

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Comment

There was a recent comment on paradox effect. Can't remember the focus. I have MDS/AML the...

https://connect.mayoclinic.org/comment/1243923/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Comment

I am 76. I have been on Vidaza for over three years with no side effects....

https://connect.mayoclinic.org/comment/1328440/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Comment

Jeffrey, I can tell you my husband’s experience with treatment and what we’ve learned from doctors....

https://connect.mayoclinic.org/comment/1300991/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025

Comment

My husband has this mutation for his MDS plus others . He is 83 years old...

https://connect.mayoclinic.org/comment/1493275/

Discussion: Does anyone have MDS with the SF3B1 mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 10:15am

Comment

husband has been on hold for cycle 3 due to low neutrophils and platelets. he is...

https://connect.mayoclinic.org/comment/1377280/

Discussion: Side effects of Vidaza injections

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2025

Comment

It took a few months for the vidaza to kick in….you will be fine…good health to...

https://connect.mayoclinic.org/comment/1328642/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Comment

Weekly labs being done. Hgb remaining around 9.9 and Hct around 30. Not seeing MD for...

https://connect.mayoclinic.org/comment/1399683/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025

Comment

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Comment

Your hematologist oncologist would be the person to set the dosages for you with these meds....

https://connect.mayoclinic.org/comment/1332069/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2025

Comment

Thank you for inquiring about our case update. We have gone through 10 weeks of Iron...

https://connect.mayoclinic.org/comment/1399418/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025