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Low Platelets with Myelodysplastic Syndrome (MDS)
Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...
Last active: Jan 24, 2023
Discussion
MDS and little bump/pimple like things and itching.
Is there anyone that has MDS and get these little bump that itch like crazy? I get them on my cheeks in the side burn...
Last active: 20 hours ago
Discussion
If you have MDS, do you think you got it?
I have heard that MDS is caused from some sort of chemical or chemicals. If you had to guess (Or maybe you know for sure)...
Last active: 2 days ago
Discussion
Anyone living with MDS Extended diagnosis experience?
Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...
Last active: Jan 19, 2025
Discussion
What are your experiences with lenalidomide (Revlimid) for MDS?
My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...
Last active: May 10, 2025
Discussion
Anyone taking retacrit and releuko injections for MDS
My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?
Last active: Feb 1, 2024
Discussion
MDS-CMML-1: Anyone dealing with pruritus (itching)?
I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...
Last active: Mar 17 8:42am
Discussion
Anyone with MDS and Anemia receiving injections of growth hormone?
Is there anyone who has been diagnosed with MDS with anemia who is taking hormone injections to help the bone marrow produce healthy red blood...
Last active: Mar 31 8:31am
Discussion
How's your quality of life living with MDS?
This may be a broad question because MDS has different types of symptoms. (Can't think of the right word).Anyways what I'd like to know is...
Last active: May 30 5:01pm
Discussion
Anyone have or heard of MDS with 5q-syndrome?
Hello everyone I have been told I have MDS5q Low risk, I have blood work done every 2 weeks.All they want to do is out...
Last active: Mar 22, 2025