Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
461 total results
Discussion
question for oldtimers
Since joining after my MDS diagnosis, I have noticed some people join Mayo who do not have any type of blood disorder or cancer. They...
Last active: Mar 10 12:40pm
Discussion
JAK2 and Heart Disease
I have MDS/MPN Overlap. On the MPN side I have ET and MF. I recently developed a heart problem and had an ablation at the...
Last active: Dec 19, 2019
Discussion
How does someone “feel” with untreated AML?
My brother suffered a TBI 38 years ago. He was living independently for decades, but every day was a struggle for him. Not only with...
Last active: Feb 24 11:52am
Discussion
Insurance has denied coverage
I've been fighting MF and MDS for a long time. Had a number of different treatments over the years. Some helped more than others, but...
Last active: Jan 11 8:45pm
Discussion
Chimerism Test Results Post Stem Cell Transplant
Hello,My husband, Mark, 69 years old, was diagnosed with Myelodysplastic Syndromes blood cancer in May 2022 and had an allo SCT in November 2022 at...
Last active: May 21 9:47am
Discussion
Coping with long term cancers
I guess on one level, having to cope with long term cancer is better than the alternative. :-) However, my wife was diagnosed with CLL...
Last active: Mar 11, 2019