Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
291 total results
Discussion
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...
Last active: Mar 19 11:33am
Discussion
Need help newly diagnosed with a high platelet count and the JAK2 gene
Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...
Last active: Sep 29 9:06am
Discussion
Jak2 Detected, Healthy otherwise, What's next?
Hi All,Appreciate guidance from this group as I am panicking a bit.JAK2 V617F mutation was deleted in routine blood test. AK2 V617F Percent Mutated Alleles...
Last active: Sep 29, 2023
Discussion
Anyone else find the side effects of Hydrea 500MG frightening?
I was diagnosed with having a blood cancer that looks and acts a lot like Polycythemia Vera (PV) about 6 years ago. I’ve been rolling...
Last active: Oct 20 6:16pm