Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,473 total results

Comment

Torcia, stress does not elevate your platelets...did you have the JAK2 test yet? It is the...

https://connect.mayoclinic.org/comment/941830/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Comment

I’m pretty much the same as jackiecarry above. I’m 71 and had a JAK2 positive reading...

https://connect.mayoclinic.org/comment/1141239/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

Comment

I wonder what stats are for ET Jak2, if taking HU+baby aspirin, and still get a...

https://connect.mayoclinic.org/comment/1089089/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Comment

I also have ET JAK2 taking HU. My primary tested me some years before diagnosis, and...

https://connect.mayoclinic.org/comment/801452/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Comment

Jak2 is negative...they keep telling me it's from smoking but I don't fit the profile and...

https://connect.mayoclinic.org/comment/1137758/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Comment

Hi Barbie......I have jak2.....myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of...

https://connect.mayoclinic.org/comment/194342/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

Comment

@1pearl I also have an enlarged sternoclavicular joint that they are going to do a steroid...

https://connect.mayoclinic.org/comment/1475953/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 2:48pm

Comment

Hi, I am in the USA and no bone marrow biopsy was done on me to...

https://connect.mayoclinic.org/comment/1216299/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Comment

I am 73 and am positive for Waldenstrom’s Macroglobulinemia, MYD88 positive, CXCR4 negative. In addition, I...

https://connect.mayoclinic.org/comment/1518410/

Discussion: Anyone diagnosed with both myelofibrosis and Waldenstroms lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 8:55am

Comment

@ebertolis Hi Eva, Thank you for the information. I am 81. I have been taking Hydroxyurea...

https://connect.mayoclinic.org/comment/1513801/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 4:41pm