Blood Cancers & Disorders Support Group

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Comment

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

Comment

I think it's important to have a complete blood workup and a bone marrow biopsy and...

https://connect.mayoclinic.org/comment/1162900/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 26 8:55am

Comment

I have an appointment in a little over a week. I have already been diagnosed with...

https://connect.mayoclinic.org/comment/1152427/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 5 1:08pm

Comment

I’m a 56 yr old female and was just diagnosed with PV in January Jak2 positive....

https://connect.mayoclinic.org/comment/836589/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Comment

Hello sorry for delayed response. I have had PV with JAK2 for almost 5 years. I...

https://connect.mayoclinic.org/comment/788322/

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

Comment

I have MDS/MPN with Thrombocytosis which means I have very high platelets (over 1.2 million). I...

https://connect.mayoclinic.org/comment/918100/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Comment

I am almost 72, with JAK2 diagnosed a year ago, no history of thrombosis. My hematologist/oncologist...

https://connect.mayoclinic.org/comment/1026479/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 7:17am

Comment

I definitely would ask about this - and ask for this testing if not done. For...

https://connect.mayoclinic.org/comment/1102239/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9 10:37am

Comment

I was diagnosed just about a year ago with PV. Been on Hydrea since May. My...

https://connect.mayoclinic.org/comment/842778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Comment

I was diagnosed in Jan 2023 with PV I was 56 and no health issues or...

https://connect.mayoclinic.org/comment/1073615/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 24 6:55am