Blood Cancers & Disorders Support Group

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Comment

I also have ET JAK2 taking HU. My primary tested me some years before diagnosis, and...

https://connect.mayoclinic.org/comment/801452/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Comment

Hi Barbie......I have jak2.....myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of...

https://connect.mayoclinic.org/comment/194342/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

Comment

Hi Karen, I am unfamiliar with TET2 mutation. I have ET JAK2. I live in the...

https://connect.mayoclinic.org/comment/783703/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Comment

@1pearl I also have an enlarged sternoclavicular joint that they are going to do a steroid...

https://connect.mayoclinic.org/comment/1475953/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 2:48pm

Comment

Hi, I am in the USA and no bone marrow biopsy was done on me to...

https://connect.mayoclinic.org/comment/1216299/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Comment

@ebertolis Hi Eva, Thank you for the information. I am 81. I have been taking Hydroxyurea...

https://connect.mayoclinic.org/comment/1513801/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 4:41pm

Comment

@toste I was also diagnosed with myelofibrosis and the JAK2 mutation about a year ago. I...

https://connect.mayoclinic.org/comment/1494172/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 11:32am

Comment

I am 73 and am positive for Waldenstrom’s Macroglobulinemia, MYD88 positive, CXCR4 negative. In addition, I...

https://connect.mayoclinic.org/comment/1518410/

Discussion: Anyone diagnosed with both myelofibrosis and Waldenstroms lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 8:55am

Comment

I was 65 years old and was diagnosed with ET/Jak2 mutation. My platelet count was 1...

https://connect.mayoclinic.org/comment/786781/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Comment

I was on keto better than 1 yr. Lost intended weight pcp extremely happy with labs...

https://connect.mayoclinic.org/comment/645538/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021