Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with the same jak2 positive and my platelets are in the 500’s. Hydro...

https://connect.mayoclinic.org/comment/929131/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

From my understanding PV doesn’t run in families. It’s usually caused by an acquired mutation in...

https://connect.mayoclinic.org/comment/1239444/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 6:42pm

Comment

Hello everyone, I am recently diagnosed with ET and the Jak2 mutation. Cubby 13, I feel...

https://connect.mayoclinic.org/comment/1293524/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 12:12pm

Comment

I’m a 83-year-old female, diagnosed with lymphoma and myelofibrosis (JAK2 mutation) in June of 2024. I’ve...

https://connect.mayoclinic.org/comment/1252690/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 3:11pm

Comment

Though I was diagnosed with ET, and JAK2 this summer, I still hesitate to take Hydrea...

https://connect.mayoclinic.org/comment/770145/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

Comment

ET stands for Essential Thrombocytosis. , I have this also and with a JAK2 mutation. If...

https://connect.mayoclinic.org/comment/919462/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Comment

After reading that so many JAK2 people experience being weak or tired, and have balance issues,...

https://connect.mayoclinic.org/comment/194344/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2019

Comment

Hi again nohrt4me, Yes, it would be wonderful if patients like you with CALR doing very...

https://connect.mayoclinic.org/comment/1313447/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26 2:45pm

Comment

My wife, who is 72 was recently diagnosed with ET. She had a blood test prior...

https://connect.mayoclinic.org/comment/1145648/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

Comment

I was just diagnosed with Jak2/ET and had a bone marrow biopsy that ruled out other...

https://connect.mayoclinic.org/comment/1193558/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024