Blood Cancers & Disorders Support Group

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Comment

Yes sorry :( My mom was jak2 positive - high hemoglobin and high hemacrit. The biopsy...

https://connect.mayoclinic.org/comment/1228461/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3 9:54am

Comment

Diagnosed with prefibrotic myelofibrosis 7/25. 78 years old with JAK2, ASXL1, ZRSR2 & TET2 mutations. Platelets...

https://connect.mayoclinic.org/comment/1366821/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 9 7:57am

Comment

Welcome to the club. Almost 71 yo woman w/ET a few months now. Platelets are in...

https://connect.mayoclinic.org/comment/848468/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Comment

Most on this site say that they are prescribed baby aspirin along with HU. I was...

https://connect.mayoclinic.org/comment/837314/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023

Comment

I was diagnosed with Jak2 in 2019 and have been taking the hydra drug and I...

https://connect.mayoclinic.org/comment/194372/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2021

Comment

It seems that different people need different doses. What you're doing is working for you --...

https://connect.mayoclinic.org/comment/1047264/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Comment

My daughter was recently diagnosed with JAK2. She has had two iron treatments and has another...

https://connect.mayoclinic.org/comment/328577/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

Comment

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

Comment

Hmm, I think @1pearl mentioned that her platelet levels are dropping without meds and that she...

https://connect.mayoclinic.org/comment/1248005/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 1 11:08am

Comment

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023