Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
993 total results
All
Discussions (65)
Comments (928)
Comment
MJPM- Many thanks for your epistle and distinct definitions. I have suffered from ET for about...
https://connect.mayoclinic.org/comment/328599/
Copy link to clipboard
Discussion:
JAK2 Mutation, Low Iron and High Platelet count
Support Group:
Blood Cancers & Disorders
Posted: Mar 23, 2021
Comment
So glad to hear you are not having symptoms and it has not morphed into leukemia....
https://connect.mayoclinic.org/comment/203949/
Copy link to clipboard
Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jan 4, 2019
Comment
Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...
https://connect.mayoclinic.org/comment/799775/
Copy link to clipboard
Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Jan 21, 2023
Comment
really, no one wants plts with JAK2..and they rebuild so fast, it doesn't really help to...
https://connect.mayoclinic.org/comment/1047269/
Copy link to clipboard
Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Apr 8 8:42am
Comment
A year and a half ago, I presented a hemoglobin of 7g with no evidence of...
https://connect.mayoclinic.org/comment/915865/
Copy link to clipboard
Discussion:
Iron deficiency anemia without an apparent cause
Support Group:
Blood Cancers & Disorders
Posted: Aug 20, 2023
Comment
Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...
https://connect.mayoclinic.org/comment/870437/
Copy link to clipboard
Discussion:
PV and fatigue
Support Group:
Blood Cancers & Disorders
Posted: Jun 1, 2023
Comment
Welcome to Connect, @eferret. Polycythemia vera is from a group of blood conditions called myeloproliferative neoplasms....
https://connect.mayoclinic.org/comment/1125122/
Copy link to clipboard
Discussion:
How much of a risk factor is high white blood cell count with pv?
Support Group:
Blood Cancers & Disorders
Posted: Aug 16 8:56pm
Comment
Hello, many people choose not to have the bone marrow test. PV can be diagnosed solely...
https://connect.mayoclinic.org/comment/1156731/
Copy link to clipboard
Discussion:
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
Support Group:
Blood Cancers & Disorders
Posted: Oct 14 6:20am
Comment
Thanks for the question. If the diagnosis is clear without punching around in the marrow, the...
https://connect.mayoclinic.org/comment/593688/
Copy link to clipboard
Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Apr 12, 2021
Comment
A hematologist should follow IPSET guidelines for ET clot prevention: JAK2+ and over 60 = platelet...
https://connect.mayoclinic.org/comment/796537/
Copy link to clipboard
Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Jan 14, 2023
First
Previous
...
35
36
37
38
39
40
41
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.