Blood Cancers & Disorders Support Group

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Comment

Pixiesusan, so good to hear back from you. My first bone biopsy in Oct. of 21...

https://connect.mayoclinic.org/comment/1151293/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

Comment

Hello. I was diagnosed with MDS (iso 5q deletion) 3 1/2 years years ago at age...

https://connect.mayoclinic.org/comment/924375/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Comment

I have MDS and have been on Vidaza for 3 years, (36 cycles) 5 days every...

https://connect.mayoclinic.org/comment/1302372/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 12 9:44am

Comment

Hi @janetlen, I just read your first post regarding your diagnosis with MDS this summer and...

https://connect.mayoclinic.org/comment/986040/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Comment

With all the current news on semaglutides for cognitive decline, has anyone tried that while also...

https://connect.mayoclinic.org/comment/1251804/

Discussion: AML with Cognitive Decline: At a loss of what to do for my father

Support Group: Blood Cancers & Disorders

Posted: Mar 6 12:18pm

Comment

I have MDS and MGUS (which is the precursor to MM). I am going to be...

https://connect.mayoclinic.org/comment/1017373/

Discussion: Has anyone been diagnosed with both AML and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

Comment

Hi Anne, My name is Brenda. I was diagnosed August 2023 with MDS. Hope you can...

https://connect.mayoclinic.org/comment/997417/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Comment

I will be having a BMT in a few months for MDS. Is there any advice...

https://connect.mayoclinic.org/comment/1001115/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 21, 2024

Comment

I also have MDS/MPN with RS and T. My platelets shot up to 1,100 in March....

https://connect.mayoclinic.org/comment/863279/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 20, 2023

Comment

Where do you get your energy? 😅 Working with 3-5 year olds would drain me completely...

https://connect.mayoclinic.org/comment/1259235/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 8:48am