Blood Cancers & Disorders Support Group

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Comment

Thank you for replying. So sorry for all you go through and for the loss of...

https://connect.mayoclinic.org/comment/817168/

Discussion: Polycythemia Vera, Antiphospholipid Syndrome & Hemochromatosis

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Comment

Welcome to Mayo Connect, @jgjacksonmn1 Well, this news sure clipped you both off at the knees....

https://connect.mayoclinic.org/comment/1520151/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:19am

Comment

Hello! I'm not a doctor but to provide some input on your question. Hydroxyurea is a...

https://connect.mayoclinic.org/comment/1299664/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2025

Comment

Just curious about how long you were on Sirolimus before you were tapered off after transplant?...

https://connect.mayoclinic.org/comment/633112/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 6, 2021

Comment

Hi @sharonm2023. Welcome to Connect. I promise you won’t be alone here! There are quite a...

https://connect.mayoclinic.org/comment/1209751/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

Comment

Hi @treeore Love the idea of your new toy for summer! You’ll have a blast out...

https://connect.mayoclinic.org/comment/866050/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Comment

Hi @oliviamitza Welcome to Mayo Connect. I’m so sorry to hear that your mom’s blood condition...

https://connect.mayoclinic.org/comment/1505453/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 9:32am

Comment

@rivieramaya2009 Good evening! I am also wondering if anyone can see and read our posts !...

https://connect.mayoclinic.org/comment/1421354/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

Comment

Sorry you are going through this time of uncertainty, Lisa. The uncertainty is worse than the...

https://connect.mayoclinic.org/comment/1165789/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2024

Comment

I was diagnosed with ET when I was 50. My platelet level was successfully controlled with...

https://connect.mayoclinic.org/comment/1327870/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2025