Blood Cancers & Disorders Support Group

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Comment

I didn’t get diagnosed with JAK2 and PV (2022)until a year after a hysterectomy (2021). (They...

https://connect.mayoclinic.org/comment/763289/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Comment

Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...

https://connect.mayoclinic.org/comment/1299114/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2025

Comment

I also had PCV dx and was already taking a blood anti coagulant(xarelto) and baby aspirin...

https://connect.mayoclinic.org/comment/1086296/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Comment

No, it was not mentioned. I did have three different blood tests done which showed I...

https://connect.mayoclinic.org/comment/827610/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Comment

I also suffer from low iron after many phlebotomies. I had an iron infusion one year...

https://connect.mayoclinic.org/comment/1225254/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025

Comment

I’m wondering who tried the keto diet and how it worked. I started keto a year...

https://connect.mayoclinic.org/comment/775370/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2022

Comment

Just because you have the JAK2 mutation it doesn't mean you cannot have other gene mutations....

https://connect.mayoclinic.org/comment/194366/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2020

Comment

Have you been tested for gout? My JAK2 was determined after I complained of bad knee...

https://connect.mayoclinic.org/comment/1348052/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Comment

Good morning, @mags17 Polycythemia Vera is a blood condition where too many red blood cells are...

https://connect.mayoclinic.org/comment/919145/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Comment

I was diagnosed with high platelets after a blood test in January 2025. My previous July...

https://connect.mayoclinic.org/comment/1348757/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025