Blood Cancers & Disorders Support Group

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Comment

My hematologist just prescribed 500 mg of Hydrea every other day for me. My bone marrow...

https://connect.mayoclinic.org/comment/1305749/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 16 7:53pm

Comment

https://www.mpnresearchfoundation.org/understanding-mpns/ The MPN Reasearch Foundation is a good information resource tostart with. Also try Googling Myeloproliferative...

https://connect.mayoclinic.org/comment/978550/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

Comment

My daughter was diagnosed wit JAK2 October 2020 She hasn’t had any clotting yet so praying...

https://connect.mayoclinic.org/comment/194377/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2021

Comment

Hello Scott- My oncologist did the bone marrow procedure 3 years ago and confirmed the cause...

https://connect.mayoclinic.org/comment/652292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2021

Comment

I have had ET, JAK2 positive, for 12 years. Received no treatment until 20 months ago...

https://connect.mayoclinic.org/comment/997147/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Comment

After my shingles shot, a week later I had my routine quarterly blood chem for ET...

https://connect.mayoclinic.org/comment/1357438/

Discussion: Is it common for platelet level to drop?

Support Group: Blood Cancers & Disorders

Posted: Jul 27 9:00am

Comment

For what it’s worth, some docs call this a cancer while others say it’s a neoplasm....

https://connect.mayoclinic.org/comment/1061678/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

Comment

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:15am

Comment

I have been taking Eliquis for AFib for several years. This was ordered by my cardiologist....

https://connect.mayoclinic.org/comment/811705/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Comment

Hi donlynn, I moved your questions to this existing discussion on the same topic of JAK2...

https://connect.mayoclinic.org/comment/599836/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021