Blood Cancers & Disorders Support Group

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Comment

Well, I’ve been taking it for about 5 years for PV. I’m 77. I’d love to...

https://connect.mayoclinic.org/comment/1289774/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

Comment

ET jacks up histamine production. I'm not sure researchers know why this is part of the...

https://connect.mayoclinic.org/comment/1259381/

Discussion: ET Jak2 mutation itching

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

Comment

Yes, I certainly had many of the common CLL/SLL signs and symptoms. Intense fatigue and tiredness,...

https://connect.mayoclinic.org/comment/1056602/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

Comment

Hi, my Mom was diagnosed with Polycythemia Vera after her labs went crazy. They did not...

https://connect.mayoclinic.org/comment/718613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2022

Comment

Hello Donna, I've been waiting to see some results before I answered you. The third day...

https://connect.mayoclinic.org/comment/747426/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

Comment

@roughanne Hello. I was diagnosed with JAK2/PV almost 6 years ago. I’m 78 soon. Started on...

https://connect.mayoclinic.org/comment/1437600/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2025

Comment

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

Comment

I have only taken hydroxyurea and Jakafi. I was in a clinical study for a while...

https://connect.mayoclinic.org/comment/1368004/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Comment

Agree regarding the itching - tops of hands, chest, back (where I cannot reach!), and arms....

https://connect.mayoclinic.org/comment/1316060/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 29, 2025

Comment

Hello, I am new here but wanted to ask a few questions. I am waiting on...

https://connect.mayoclinic.org/comment/1276146/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025