Blood Cancers & Disorders Support Group

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Comment

Hello. I’ve had relatively little itching since I started HU about five years ago. Curiously, my...

https://connect.mayoclinic.org/comment/1375023/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

Comment

Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...

https://connect.mayoclinic.org/comment/807931/

Discussion: Possible Polycythemia Tinnitus, Dizziness, Headache, Fatigue

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Comment

I have been trying to get help and told this is what I have, 2 years...

https://connect.mayoclinic.org/comment/806632/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

Comment

Thank you @mefely. That's an interesting statement, does not help regrow, but does help keep it....

https://connect.mayoclinic.org/comment/1260618/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2025

Comment

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

Comment

I have CMML/MF and have been dealing with itching for ten years. Jakafi works to some...

https://connect.mayoclinic.org/comment/1431290/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

Comment

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087439/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Comment

Welcome to Connect, @wesm. Polycythemia Vera is a condition where your body is producing too many...

https://connect.mayoclinic.org/comment/1094588/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Comment

Hello, new to these posts, groups and all of this information. I have had atopic dermatitis...

https://connect.mayoclinic.org/comment/161948/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2019

Comment

I was diagnosed with IgA MGUS WHEN I WAS 52. I’m now 61. The typical age...

https://connect.mayoclinic.org/comment/1248366/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025