Blood Cancers & Disorders Support Group

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Comment

Those of us with the JAK2 mutation, who have also been diagnosed with a blood disorder...

https://connect.mayoclinic.org/comment/836188/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Comment

There seems to be a correlation with chromosome mutation(s) one of which is referred to as...

https://connect.mayoclinic.org/comment/766919/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2022

Comment

This is where it gets confusing. The low end of our lab reference range for EPO...

https://connect.mayoclinic.org/comment/745889/

Discussion: Polycythemia: Primary or Secondary?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2022

Comment

I have the Jak2 mutation when diagnosed Hematocrit was at 56 through Phlebs and Hydroxyurea my...

https://connect.mayoclinic.org/comment/1372633/

Discussion: What hematocrit (HCT) targets indicate phlebotomy needed for PVC?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2025

Comment

I was diagnosed with myelofibrosis in 2014.comfirmed with a Jak2 DNA deviation test . Up until...

https://connect.mayoclinic.org/comment/1527906/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 11:35pm

Comment

@preacherswife1977 Hi I have ET and the JAK2. Still learning lots. I had lots of joint...

https://connect.mayoclinic.org/comment/1540779/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

Comment

I was diagnosed 3 years ago with secondary (non cancerous) PV. I do not have the...

https://connect.mayoclinic.org/comment/870096/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Comment

I joined the JAK2 club in 2018. I have Polycythemia Vera which is a MPN sister...

https://connect.mayoclinic.org/comment/1184707/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Comment

With higher platelet numbers you are putting yourself at a higher risk of pulmonary embolisms. From...

https://connect.mayoclinic.org/comment/869593/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023