Blood Cancers & Disorders Support Group

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Comment

I was put on hydroxyurea when first diagnosed with JAK2/PV about a year ago and side-effects...

https://connect.mayoclinic.org/comment/828776/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Comment

Is TET2 a new driver mutation? All I have heard of is JAK2, CALR, and MPL....

https://connect.mayoclinic.org/comment/765429/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Comment

yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,...

https://connect.mayoclinic.org/comment/798768/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

Comment

Welcome jewelfaux, When were you first diagnosed with ET JAK2 and what was your initial platelet...

https://connect.mayoclinic.org/comment/827844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2023

Comment

Jak2 is negative...they keep telling me it's from smoking but I don't fit the profile and...

https://connect.mayoclinic.org/comment/1137758/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Comment

I also have ET JAK2 taking HU. My primary tested me some years before diagnosis, and...

https://connect.mayoclinic.org/comment/801452/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Comment

Hi Barbie......I have jak2.....myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of...

https://connect.mayoclinic.org/comment/194342/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

Comment

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

The International Myeloma Foundation is at myeloma.org. Your link took me to the International Monetary Fund....

https://connect.mayoclinic.org/comment/740005/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2022

Comment

Hi @shree, I know you are concerned that most of the discussions you’ve found on ET...

https://connect.mayoclinic.org/comment/1269512/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29 3:18pm