Blood Cancers & Disorders Support Group

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Comment

Is TET2 a new driver mutation? All I have heard of is JAK2, CALR, and MPL....

https://connect.mayoclinic.org/comment/765429/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Comment

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

Hi again nohrt4me, Yes, it would be wonderful if patients like you with CALR doing very...

https://connect.mayoclinic.org/comment/1313447/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26 2:45pm

Comment

Lori, I'm 75 take 325mg aspirin and 1500mg HU every other day and 1000mg on opposite...

https://connect.mayoclinic.org/comment/975739/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

Comment

I was diagnosed with JAK2 617F in 2/2020 and began hydroxyurea treatment in 4/2022. I just...

https://connect.mayoclinic.org/comment/670146/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 11, 2022

Comment

Hi Jen— I’m in the same club. ET w/JAK2. Diagnosed last month. Platelets were 720 initially...

https://connect.mayoclinic.org/comment/1301134/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 10 12:07pm

Comment

Welcome jewelfaux, When were you first diagnosed with ET JAK2 and what was your initial platelet...

https://connect.mayoclinic.org/comment/827844/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2023

Comment

I'm Jak2 positive also verified by 2 separate labs..I wasn't happy with my first hematologist not...

https://connect.mayoclinic.org/comment/1088001/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

Comment

Sorry, I didn't quite follow this. Does your husband's doc think the jump to 1,000 was...

https://connect.mayoclinic.org/comment/826408/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2023

Comment

I have just been diagnosed, ET with JAK2 mutation....he wants me to start on Hydrea...it is...

https://connect.mayoclinic.org/comment/194370/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2020