I have the Jak2 mutation when diagnosed Hematocrit was at 56 through Phlebs and Hydroxyurea my blood specialist likes to see me at 42
And that's when I feel my best ,he's not so concerned about platelets and they do run in the 6 to 700,s
My hematocrit is the indicator for phlebotomy. If it goes above 42 I can tell because my legs begin to feel it (it’s not pain and hard to describe but I know). The record indicates I can “tolerate” 43-44 and I had a nurse at the Infusion Center tell me I did not need the phlebotomy scheduled because my hematocrit was 43. I insisted she speak to doctor because I felt lousy. The doctor knows I am the best judge of how I feel and it was done.
Platelets have gone from low of 270’s to high of 340’s.
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I have the Jak2 mutation when diagnosed Hematocrit was at 56 through Phlebs and Hydroxyurea my blood specialist likes to see me at 42
And that's when I feel my best ,he's not so concerned about platelets and they do run in the 6 to 700,s
My hematocrit is the indicator for phlebotomy. If it goes above 42 I can tell because my legs begin to feel it (it’s not pain and hard to describe but I know). The record indicates I can “tolerate” 43-44 and I had a nurse at the Infusion Center tell me I did not need the phlebotomy scheduled because my hematocrit was 43. I insisted she speak to doctor because I felt lousy. The doctor knows I am the best judge of how I feel and it was done.
Platelets have gone from low of 270’s to high of 340’s.
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