Blood Cancers & Disorders Support Group

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Comment

Hello, are you still discussing myelofibrosis? I was diagnosed in 2011. Presumably, it was already in...

https://connect.mayoclinic.org/comment/132611/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2020

Comment

Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...

https://connect.mayoclinic.org/comment/1299114/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: May 7 1:14pm

Comment

I had this for years. Scopes, turned up nothing. I finally got a hemotologist to look...

https://connect.mayoclinic.org/comment/1296301/

Discussion: Anemia and blood transfusions without any sign of blood loss

Support Group: Digestive Health

Posted: May 4 9:38am

Comment

Just so we're all on the same page, here's what yr referencing: Cytoreductive treatment with hydroxyurea...

https://connect.mayoclinic.org/comment/1297950/

Discussion: What’s the cost of Pegasys with good commercial insurance?

Support Group: Blood Cancers & Disorders

Posted: May 6 7:00am

Comment

My first meeting with an oncologist after an accurate diagnosis of Primary Mylofibrosis was disturbing. She...

https://connect.mayoclinic.org/comment/1313191/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26 9:31am

Comment

What do you mean they can't do much? That doesn't sound good at all! You need...

https://connect.mayoclinic.org/comment/1102499/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Comment

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

My heart goes out to you Posted by mtnlife @mtnlife, 6 days ago. I don't know...

https://connect.mayoclinic.org/comment/802874/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Comment

My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...

https://connect.mayoclinic.org/comment/797572/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023