Blood Cancers & Disorders Support Group

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Comment

I have been very happy to read online the positive responses to taking HU instead of...

https://connect.mayoclinic.org/comment/1313649/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Comment

I'm not trying to disagree or judge..I'm an MdAnderson, Houston patient first for Breast Cancer, then...

https://connect.mayoclinic.org/comment/1439233/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2025

Comment

Everyone, I learned years ago that platelet level was not the most important factor in deciding...

https://connect.mayoclinic.org/comment/846204/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Comment

I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...

https://connect.mayoclinic.org/comment/256904/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Comment

I have had PV with JAK2 for over 4 years. Started with phlebotomies and Hydrea, now...

https://connect.mayoclinic.org/comment/783004/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

Comment

I have the typical high and low blood count concerns that most myelofibrosis patients deal with,...

https://connect.mayoclinic.org/comment/1426293/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2025

Comment

My comment was somewhat vague. I had my first visit with hematologist/oncologist that diagnosed Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/1312651/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Comment

Hi, I'm 79 yr old female, on HU (500 mg daily) for a couple of years...

https://connect.mayoclinic.org/comment/1514200/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 25 8:34am

Comment

Yes my husband had the JAK2 test after his platelets were in the 800's. And JAK2...

https://connect.mayoclinic.org/comment/1009781/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

A high platelet count typically is indicative of Essential Thrombocythemia. The normal treatment is Hydroxyurea which...

https://connect.mayoclinic.org/comment/328578/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021