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Blood Cancers & Disorders Support Group

Public Support Group
278 total results
Discussion
Any correlation between Essential Thrombocythemia & high B12?
I was diagnosed with Essential Thrombocythemia in December 2022. My platelets have been kept under control with 500 mgs of Hydroxyurea 3 x a week....
Last active: Jun 25, 2024
Discussion
Research on COVID 19 vax causing Essential Thrombocythemia?
I’ve seen very little about what causes a genetic corruption that leads to iessential Thrombocythemia. However i’ve been going back and acquiring past blood tests...
Last active: Dec 6, 2024
Discussion
JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches
On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...
Last active: Jul 17, 2023
Discussion
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Last active: Feb 28, 2023
Discussion
Does anyone else have more than one myeloproliferative disorder?
Hello. I am new to this group and looking to connect with fellow members who are dealing with MPD. I have Essential Thrombocythemia as well...
Last active: Dec 19, 2022
Discussion
Could erythritol be adding to my platelet count?
I have essential thrombocythemia. I use liquid coffee creamer that contains erythritol. Could this be increasing my platelet count?
Last active: Mar 2, 2023
Discussion
Myeloproliferative neoplasm Anyone else have a similar diagnoses?
Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...
Last active: Feb 7, 2023
Discussion
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
I was diagnosed with Essential Thrombocythemia last November and am on Hydroxyurea 1500mg daily in an effort to reduce my platelet count, still in 9000s....
Last active: Mar 29, 2024
Discussion
New dx of Post ET-MF
Hi, I was diagnosis with post essential thrombocythemia myelofibrosis 5 weeks ago. I am classified as low risk, with my age of 62 being the...
Last active: Oct 7, 2019
Discussion
New to Hydrea for ET
I am a 73 year old very active woman who was recently diagnosed with Essential Thrombocythemia by having a high blood platelet in a CBC...
Last active: 5 days ago