Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

208 total results

Comment

My mom’s suggested treatment was 5 days of Vidaza, 3 weeks off, repeat for as long...

https://connect.mayoclinic.org/comment/1385152/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2 2:33pm

Comment

I was diagnosed with MDS over two years ago. My Hgb was at 7 at that...

https://connect.mayoclinic.org/comment/1142396/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

Comment

Hi Linda, I am not familiar with Decetabine. I was on Vidaza and Venclexta. Congratulations on...

https://connect.mayoclinic.org/comment/890447/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

Our doctor said he has had patients do well on Vidaza for many years.

https://connect.mayoclinic.org/comment/251920/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

Comment

@pinch, welcome. Have you started treatment with azacitidine (Vidaza)? How is it going so far?

https://connect.mayoclinic.org/comment/1187051/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2024

Comment

Just make sure while you are getting your monthly Vidaza treatments to take Ondansetron for nausea....

https://connect.mayoclinic.org/comment/1328457/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16 1:24pm

Comment

Hello @dchavian, welcome to Connect. I invite you to look at the following discussion in addition...

https://connect.mayoclinic.org/comment/251917/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2019

Comment

Hello @justmeb5 Did you mean Vidaza and not Livaza? From my understanding, epoetin and Vidaza aren’t...

https://connect.mayoclinic.org/comment/1282886/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 11:29pm

Comment

Diagnosed with MDS. I am very interested if there are other drugs than Vidaza? And if...

https://connect.mayoclinic.org/comment/1283488/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 4:12pm

Comment

Hi @jonkerri, I'm tagging a few members who have experience with azacitidine (Vidaza) like @encb27 @tampakaren...

https://connect.mayoclinic.org/comment/1232595/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 8 8:28pm