Blood Cancers & Disorders Support Group

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Comment

Hello @dchavian, welcome to Connect. I invite you to look at the following discussion in addition...

https://connect.mayoclinic.org/comment/251917/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2019

Comment

I was diagnosed with MDS over two years ago. My Hgb was at 7 at that...

https://connect.mayoclinic.org/comment/1142396/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

Comment

Hi Linda, I am not familiar with Decetabine. I was on Vidaza and Venclexta. Congratulations on...

https://connect.mayoclinic.org/comment/890447/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

Diagnosed with MDS. I am very interested if there are other drugs than Vidaza? And if...

https://connect.mayoclinic.org/comment/1283488/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Comment

Hi @jalan00 You’re not rambling at all! You’re being very proactive in trying to find information...

https://connect.mayoclinic.org/comment/1483725/

Discussion: How long can you be on azacitidine/vidaza?

Support Group: Blood Cancers & Disorders

Posted: Jan 16 9:51am

Comment

I am on my 37th Cycle with Vidaza (that's over 3 years) and have not had...

https://connect.mayoclinic.org/comment/1328437/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Comment

Just make sure while you are getting your monthly Vidaza treatments to take Ondansetron for nausea....

https://connect.mayoclinic.org/comment/1328457/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Comment

Hi @jonkerri, I'm tagging a few members who have experience with azacitidine (Vidaza) like @encb27 @tampakaren...

https://connect.mayoclinic.org/comment/1232595/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025

Comment

Hello @justmeb5 Did you mean Vidaza and not Livaza? From my understanding, epoetin and Vidaza aren’t...

https://connect.mayoclinic.org/comment/1282886/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2025

Comment

I use ventoclax 7 days at 400 mg with vidaza 3 days seems to be my...

https://connect.mayoclinic.org/comment/1176765/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024