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Blood Cancers & Disorders Support Group

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2,078 total results
Discussion
MGUS Bloodwork Frequency
What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...
Last active: Apr 24 10:36pm
Discussion
MGUS, pain and weight loss
My husband was diagnosed with MGUS in late 2024 and has lab work done every six months. My concern is the pain he has in...
Last active: Aug 27 9:58pm
Discussion
MGUS and restless leg syndrome
Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...
Last active: Jun 9, 2023
Discussion
MGUS with Polycythemia Vera (PV)
Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...
Last active: May 6, 2023
Discussion
MGUS and Non-Hematologic Malignancy
Just read a study published in 2024 that showed “Increased incidence of non-hematologic malignancy in patients with monoclonal gammopathy of undetermined significance.” It also states...
Last active: Jul 28 3:49pm
Discussion
MGUS progression and excess weight
During the six months or so that I've been reading and occasionally contributing to these conversations, I've seen numerous threads relating to slowing MGUS progression...
Last active: Feb 12 4:34pm
Discussion
Always run down with MGUS
Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...
Last active: Apr 25 1:56pm
Discussion
Light Chain MGUS Progression
Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...
Last active: Aug 18, 2024
Discussion
Can MGUS be cured by CRISPR?
MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...
Last active: Oct 29, 2024
Discussion
Stopping Myeloma at the MGUS Stage
This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...
Last active: Mar 3 1:51pm