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Blood Cancers & Disorders Support Group

Public Support Group
1,545 total results
Discussion
MGUS at young age
Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...
Last active: Sep 28, 2023
Discussion
MGUS and understanding results
Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...
Last active: May 6 9:09am
Discussion
MGUS Bloodwork Frequency
What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...
Last active: Aug 30 3:49am
Discussion
Can MGUS be cured by CRISPR?
MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...
Last active: Oct 29 3:44pm
Discussion
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Last active: Sep 25 8:01am
Discussion
Anyone else have Symptomatic MGUS?
Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...
Last active: Nov 28, 2023
Discussion
Diagnosed with MGUS and CHIP with M spike
For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...
Last active: Aug 6 9:48am
Discussion
Light Chain MGUS Progression
Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...
Last active: Aug 18 9:36am
Discussion
Stopping Myeloma at the MGUS Stage
This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...
Last active: Sep 14 1:28pm
Discussion
What’s the science on diet and MGUS/SMM?
Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...
Last active: Apr 23, 2023