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Blood Cancers & Disorders Support Group

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Discussion
Anyone with primary myelofibrosis, low risk, asymptomatic?
https://connect.mayoclinic.org/discussion/pmf-primary-myelofibrosis-with-low-risk-asymptomatic/
Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...
Support Group: Blood Cancers & Disorders
Last active: Feb 13 12:18am
Discussion
Complications MOHS surgery while having ET and Von Willebrand's?
https://connect.mayoclinic.org/discussion/complications-mohs-surgery-while-having-et-and-von-willebrands/
I am 71, active, and in relatively good health. I have ET and VW's, my platelet numbers are around 520 with treatment (Jakifi). Im scheduled...
Support Group: Blood Cancers & Disorders
Last active: Dec 2, 2023
Discussion
Does anyone with Myelofibrosis suffer musscle spasm?
https://connect.mayoclinic.org/discussion/doe-anyone-with-myelofibrosis-suffer-musscle-spasm/
At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...
Support Group: Blood Cancers & Disorders
Last active: Jan 18 1:29pm