329 total results
Discussion
Essential thrombocythemia (ET): When to start hydroxyurea (HU)?
I was just diagnosed with ET. I am 61 years old. My platelet count is 640k right now.Doctor suggested I take a baby aspirin everyday...
Discussion
Tiny veins appearing while taking HU for Essential Thrombocythemia
I have been on HU for Essential Thrombocythemia since the first part of November with good results. My platelets have fallen from the mid 600s...
Discussion
JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches
On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...
Discussion
Type 1 diabetes and essential thrombocythemia: Anyone have both?
Hi, I am newly dx with ET on HU. I also have type one diabetes and on an insulin pump. To manage type one I...
Discussion
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Discussion
Any correlation between Essential Thrombocythemia & high B12?
I was diagnosed with Essential Thrombocythemia in December 2022. My platelets have been kept under control with 500 mgs of Hydroxyurea 3 x a week....
Discussion
Does anyone else have more than one myeloproliferative disorder?
Hello. I am new to this group and looking to connect with fellow members who are dealing with MPD. I have Essential Thrombocythemia as well...
Discussion
Could erythritol be adding to my platelet count?
I have essential thrombocythemia. I use liquid coffee creamer that contains erythritol. Could this be increasing my platelet count?
Discussion
Myeloproliferative neoplasm Anyone else have a similar diagnoses?
Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...
Discussion
What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?
I currently have essential thrombocythemia with the JAK2 gene mutation. I currently take 500 mg of hydra seven times a week. I’m supposed to take...
Comment
Welcome @flynnconn, I'm tagging fellow members @create @granniet @heartspace as they also have experience with myeloproliferative...
https://connect.mayoclinic.org/comment/773567/
Comment
Welcome, @gama1287. Getting a new diagnosis comes with a steep learning curve. You've come to the...
Comment
Has anyone on HU for Essential Thrombocythemia gotten a Medic Alert bracelet and do you think...
Comment
Hi, thanks for your interest, I have been suffering from essential thrombocythemia for 1 year
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