299 total results
Discussion
A link between Rheumatoid Arthritis and Essential Thrombocythemia?
Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?
Discussion
JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches
On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...
Discussion
Type 1 diabetes and essential thrombocythemia: Anyone have both?
Hi, I am newly dx with ET on HU. I also have type one diabetes and on an insulin pump. To manage type one I...
Discussion
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Discussion
Any correlation between Essential Thrombocythemia & high B12?
I was diagnosed with Essential Thrombocythemia in December 2022. My platelets have been kept under control with 500 mgs of Hydroxyurea 3 x a week....
Discussion
Does anyone else have more than one myeloproliferative disorder?
Hello. I am new to this group and looking to connect with fellow members who are dealing with MPD. I have Essential Thrombocythemia as well...
Discussion
Could erythritol be adding to my platelet count?
I have essential thrombocythemia. I use liquid coffee creamer that contains erythritol. Could this be increasing my platelet count?
Discussion
Myeloproliferative neoplasm Anyone else have a similar diagnoses?
Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...
Comment
Hi, thanks for your interest, I have been suffering from essential thrombocythemia for 1 year
Comment
Has anyone on HU for Essential Thrombocythemia gotten a Medic Alert bracelet and do you think...
Discussion
Does Hydroxyurea lower testosterone levels?
I am a 72 year old male and was diagnosed with Essential Thrombocythemia three years ago. After many tries at different doses my Oncologist settled...
Discussion
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
I was diagnosed with Essential Thrombocythemia last November and am on Hydroxyurea 1500mg daily in an effort to reduce my platelet count, still in 9000s....