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Comment

Primary myelofibrosis was diagnosed in September 2019. Have had monthly transfusions, usually 1 pint, with HGB...

https://connect.mayoclinic.org/comment/1398262/

Discussion: Chelation therapy

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

Comment

Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...

https://connect.mayoclinic.org/comment/1338019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

Comment

I see my additional messages may not have reached you. Go to pvreporter . com. There...

https://connect.mayoclinic.org/comment/1259837/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

Comment

I took my first injection of Besremi last week. My doctor's office is working on setting...

https://connect.mayoclinic.org/comment/1234766/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

Comment

When I was diagnosed with Myelofibrosis back in 03/2024 my Hematologist placed me on Danazol. I...

https://connect.mayoclinic.org/comment/1132106/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

Comment

Hi katgob, I'm certainly not one to diagnose your situation. But, I will tell you that...

https://connect.mayoclinic.org/comment/986132/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 24, 2023

Comment

@nisi I just posted this to someone asking about Jakafi and ET: “ I was placed...

https://connect.mayoclinic.org/comment/1527366/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 10:17am

Comment

Hi davi0937, Like you, I was diagnosed with primary myelofibrosis but that was one month after...

https://connect.mayoclinic.org/comment/1338448/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2025

Comment

Saw haematologist all good. I still have essential thrombocythemia. Tests show slight scaring of the bone...

https://connect.mayoclinic.org/comment/1206674/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

Comment

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023