Blood Cancers & Disorders Support Group

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Comment

I was started on HU in November to lower platelets, but have experienced extreme fatigue, shortness...

https://connect.mayoclinic.org/comment/840955/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Comment

Hi...I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was...

https://connect.mayoclinic.org/comment/132623/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2020

Comment

Hi @tamlyn74, I had platelets similar to yours on my routine first time lab with new...

https://connect.mayoclinic.org/comment/1321000/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 5 3:38pm

Comment

I was diagnosed with ET and put on 500 mg a day to lower platelets from...

https://connect.mayoclinic.org/comment/1081405/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

Comment

My wife just tested positive for JAK2 on Dec 15th, after blood work on Dec 8th...

https://connect.mayoclinic.org/comment/994115/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Comment

Welcome to Connect, @davi0937 You’re going to be in terrific hands with the hematology dept at...

https://connect.mayoclinic.org/comment/1338707/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 30 4:07pm

Comment

@juniperjgin Thank you so much! Yes it's true that the extra long wait time is simply...

https://connect.mayoclinic.org/comment/1113190/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

Comment

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890151/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

Hi@nohrt4me, My O/H told me Kaiser does not have MPN specialists so she referred me to...

https://connect.mayoclinic.org/comment/1364165/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 5 10:30am

Comment

Hi @gigi05 You’re getting some great question suggestions from our helpful members! I can toss in...

https://connect.mayoclinic.org/comment/1272546/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 11:09am