Blood Cancers & Disorders Support Group

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Comment

My friend has MDS in the late stages . He is receiving 4-6 units of blood...

https://connect.mayoclinic.org/comment/1120430/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Comment

Hi @ikampel2, welcome to Connect. I moved your post to the Cancer group so that I...

https://connect.mayoclinic.org/comment/94437/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2016

Comment

Yes, we will have an appointment on July 26th and another blood draw before that. I...

https://connect.mayoclinic.org/comment/895259/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Comment

I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...

https://connect.mayoclinic.org/comment/256904/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Comment

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

Comment

It is true what Lori said in his reply. I am not a doctor and it...

https://connect.mayoclinic.org/comment/821832/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

I was diagnosed with MDS last year. My fatigue level never improved. I also have shortness...

https://connect.mayoclinic.org/comment/1249785/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 3 6:58pm

Comment

I have posted before in both areas of MDS and Parkinson’s. Yes my husband has now...

https://connect.mayoclinic.org/comment/1250651/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 4 9:40pm

Comment

Have you found any supplements or drugs that improves your level of fatigue? I’m early in...

https://connect.mayoclinic.org/comment/1301247/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: May 10 2:47pm

Comment

Hello, Diagnosed in February 2024. Treatment is INQOVI. I get frequent blood and platelet transfusions. No...

https://connect.mayoclinic.org/comment/1219841/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 2:06pm