Blood Cancers & Disorders Support Group

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Comment

Thank You for sharing Jean-Pierre! If you don’t mind me asking how long have you had...

https://connect.mayoclinic.org/comment/961009/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Comment

I was diagnosed about 3 months ago with MDS 5Q as well. Tried shots, didn't work,...

https://connect.mayoclinic.org/comment/1259703/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 4:10pm

Comment

Anne-Marie, thank you for the information on MDS Centers of Excellence. I am fortunate since I...

https://connect.mayoclinic.org/comment/963241/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Comment

Since you mentioned ET and the VA in one sentence may I ask if you were...

https://connect.mayoclinic.org/comment/194347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

Comment

I just saw this post. My aunt had MF and developed AML 30 yrs ago. Now...

https://connect.mayoclinic.org/comment/996062/

Discussion: Long awaited Drug for myelofibrosis (MF) has been released

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

Comment

I have had 4 bone marrow biopsies as i have had MDS. I am one who...

https://connect.mayoclinic.org/comment/1231146/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 6 10:05pm

Comment

I use aranesp injections when I red blood count goes way low I also have mds-rs-sld...

https://connect.mayoclinic.org/comment/667437/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2022

Comment

After many years of dealing with MDS and MF my spleen was Huge. I had a...

https://connect.mayoclinic.org/comment/1029072/

Discussion: Polycythemia causing enlarged spleen

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

Comment

I am 59 with MDS. My platelets were bouncing around under 100 after BM transplant. Doctor...

https://connect.mayoclinic.org/comment/864385/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 22, 2023

Comment

Have you looked it up in the search bar above? I needed to look up CLL...

https://connect.mayoclinic.org/comment/1233292/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 8:34pm