Blood Cancers & Disorders Support Group

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Comment

I didn’t get diagnosed with JAK2 and PV (2022)until a year after a hysterectomy (2021). (They...

https://connect.mayoclinic.org/comment/763289/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Comment

Today I saw the hem/onc at UCLA. I will be having a guided Bone Marrow Biopsy...

https://connect.mayoclinic.org/comment/1319791/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 3 9:38pm

Comment

Yes, my naturopath has me on Nattokinese, it’s similar but different. He works w/my heme doc....

https://connect.mayoclinic.org/comment/1017850/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

Comment

My hgb is around 16.8 and hct around 49 for the past 2 years. Jak2 is...

https://connect.mayoclinic.org/comment/1131134/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

Comment

Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not...

https://connect.mayoclinic.org/comment/855393/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

Comment

A good primary physician would refer you to a hematologist to follow up the rest of...

https://connect.mayoclinic.org/comment/929639/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

Comment

My PCP in rural Mississippi urged me to see a hematologist when my CBC on routine...

https://connect.mayoclinic.org/comment/1087613/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

Comment

Hi there, I also have ET & JAK2 but with no symptoms other than high platelets....

https://connect.mayoclinic.org/comment/257506/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2019

Comment

My very active 82 year old father just got diagnosed with JAK2 positive, high white count...

https://connect.mayoclinic.org/comment/859841/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Comment

Cindy1209-- Met with the Dr 4/18 and still at a loss- waiting for the results of...

https://connect.mayoclinic.org/comment/846151/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023