Blood Cancers & Disorders Support Group

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Comment

I have Essential thrombocytosis with JAK2 mutation. I take a drug called hydrea and it has...

https://connect.mayoclinic.org/comment/916876/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Comment

Hi Helen- Thanks for your post. I was diagnosed with Essential Thrombocytemia and mutant JAK2 genes...

https://connect.mayoclinic.org/comment/328576/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2020

Comment

I too was interested in that comment. So, I googled it and, assuming I understand the...

https://connect.mayoclinic.org/comment/1440942/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2025

Comment

I also had a positive JAK2. My count is 553...I'm just on baby aspirin. My Next/first...

https://connect.mayoclinic.org/comment/1330531/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Comment

Ahhh if it were only so simple and direct. I have asked about the discrepancy and...

https://connect.mayoclinic.org/comment/905453/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2023

Comment

I have been very happy to read online the positive responses to taking HU instead of...

https://connect.mayoclinic.org/comment/1313649/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Comment

Hi Ingrid077, I hope you get definite answers soon. I was diagnosed in June 2022 with...

https://connect.mayoclinic.org/comment/792008/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2023

Comment

Hello @wa34937, welcome to Connect. You may notice I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/194356/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2020

Comment

I'm not trying to disagree or judge..I'm an MdAnderson, Houston patient first for Breast Cancer, then...

https://connect.mayoclinic.org/comment/1439233/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2025

Comment

Everyone, I learned years ago that platelet level was not the most important factor in deciding...

https://connect.mayoclinic.org/comment/846204/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023