Blood Cancers & Disorders Support Group

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Comment

In 2010 I became very sick and lethargic having to go on medical disability from my...

https://connect.mayoclinic.org/comment/104732/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2018

Comment

I am so glad to find and join this group. I have struggled with doctors not...

https://connect.mayoclinic.org/comment/884229/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Comment

Hi, Dell. I really feel badly for you. AML seems to be a really tough thing....

https://connect.mayoclinic.org/comment/163802/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2017

Comment

Wow, y’all are so inspiring. I was Diagnosed with Sytemic Amyloidosis AL. It is not a...

https://connect.mayoclinic.org/comment/1058433/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 27, 2024

Comment

Thank you. I have been educating myself daily on AL and its affect on the body...

https://connect.mayoclinic.org/comment/88320/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2019

Comment

Stanford diagnosed me with light chain amyloidosis and multiple myeloma. They recommended dara-CyBorD which consists of...

https://connect.mayoclinic.org/comment/1532424/

Discussion: What should I expect from Dara-CyBorD treatment for AL Amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21 10:24pm

Comment

I was diagnosed with Systemic Amyloidosis AL March 2024. @ the Mayo Clinic Rochester. What a...

https://connect.mayoclinic.org/comment/1392891/

Discussion: Treatment approaches for MRD positive AML in remission

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2025

Comment

Hi, @pmm - what to do if the hematologists/oncologists at your clinic "don't treat MGUS"? I...

https://connect.mayoclinic.org/comment/987303/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

Comment

My mother has been ill with a variety of issues that no one could figure out...

https://connect.mayoclinic.org/comment/88324/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

Comment

Hi @rdiehl. With a your new diagnosis, and your concerns that this may be familial, do...

https://connect.mayoclinic.org/comment/1317764/

Discussion: What is the next step for amyloidosis - unknown type?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025