Blood Cancers & Disorders Support Group

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Comment

Good morning, @samlupowitz Thanks for popping into the conversation today. What an interesting discovery and finally,...

https://connect.mayoclinic.org/comment/1503050/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 9:02am

Comment

Hi, I was diagnosed with PMF CALR + Int. 2 back in March 2021. It took...

https://connect.mayoclinic.org/comment/1045170/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2024

Comment

The problem is skinney doesn't stop. My wife usually wears a size 8 and now finds...

https://connect.mayoclinic.org/comment/132652/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2020

Comment

@swalex Just browsing your Web site: There is research underway to see if anti-inflammatory diet might...

https://connect.mayoclinic.org/comment/1525864/

Discussion: Newly Diagnosed Essential Thrombocytosis

Support Group: Blood Cancers & Disorders

Posted: Mar 13 9:32am

Comment

@chrondor (Jake), I'd like to add my welcome along with @edb1123. I'm also tagging fellow CML-ers...

https://connect.mayoclinic.org/comment/776332/

Discussion: Sprycel/Jakafi/living with CML

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

Comment

Resveratrol was being studied as a treatment for ET until the JAK inhibitors like Jakafi were...

https://connect.mayoclinic.org/comment/868606/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2023

Comment

No, not at all. First when it was determined that I had the high white count...

https://connect.mayoclinic.org/comment/1314380/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

Comment

I was diagnosed with Polycythemia Vera (PV) a year ago. The pruritus was a symptom before...

https://connect.mayoclinic.org/comment/1236497/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

Comment

As everybody is different, reactions cannot be generalized. I have seen some posts that have been...

https://connect.mayoclinic.org/comment/1350290/

Discussion: Will my Hydroxyurea dose ever be reduced? Does this happen with ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

Comment

I did try the spray and it gradually took a layer of skin off my feet,...

https://connect.mayoclinic.org/comment/1484401/

Discussion: Does anyone with Myelofibrosis suffer musscle spasm?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 6:01am