Blood Cancers & Disorders Support Group

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Comment

Hi Lori thank you for the welcome. I'm a 73 year old male. My journey started...

https://connect.mayoclinic.org/comment/782404/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

I am 68 years old, I have MGUS and arrhythmogenic cardiomyopathy. Recent immunology shows my lambda...

https://connect.mayoclinic.org/comment/1370729/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2025

Comment

I have been having an assortment of apparently unrelated minor symptoms and my PCP is dismissive...

https://connect.mayoclinic.org/comment/1305671/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2025

Comment

Jill6, The first bit of time after such a DX is rough. There are many frightening...

https://connect.mayoclinic.org/comment/104697/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2017

Comment

Thank you for asking. My appointment went great. The doctor is the head of the department...

https://connect.mayoclinic.org/comment/1317939/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

Comment

The loss of the Y chromosome in males is a hot topic among geneticist. Why is...

https://connect.mayoclinic.org/comment/1222048/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

Comment

@Jilljohnson61401 Are you still on? I am still around, but still impatiently waiting and watching. Mayo,...

https://connect.mayoclinic.org/comment/104701/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2017

Comment

Hi, I also amonthins treatment with AL Amyloidosis. Everybody is different, but generally speaking days two...

https://connect.mayoclinic.org/comment/1296892/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Comment

Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...

https://connect.mayoclinic.org/comment/987954/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Comment

I have sarcoidosis (cardiac w/pacemaker) which is an inflammatory/autoimmune disease. It sometimes goes hand in hand...

https://connect.mayoclinic.org/comment/1215885/

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025