Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

339 total results

Comment

Jill6, The first bit of time after such a DX is rough. There are many frightening...

https://connect.mayoclinic.org/comment/104697/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2017

Comment

@Jilljohnson61401 Are you still on? I am still around, but still impatiently waiting and watching. Mayo,...

https://connect.mayoclinic.org/comment/104701/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2017

Comment

The loss of the Y chromosome in males is a hot topic among geneticist. Why is...

https://connect.mayoclinic.org/comment/1222048/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

Comment

Thank you for asking. My appointment went great. The doctor is the head of the department...

https://connect.mayoclinic.org/comment/1317939/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2025

Comment

Hi, I also amonthins treatment with AL Amyloidosis. Everybody is different, but generally speaking days two...

https://connect.mayoclinic.org/comment/1296892/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Comment

Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...

https://connect.mayoclinic.org/comment/987954/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Comment

I have sarcoidosis (cardiac w/pacemaker) which is an inflammatory/autoimmune disease. It sometimes goes hand in hand...

https://connect.mayoclinic.org/comment/1215885/

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025

Comment

In 2010 I became very sick and lethargic having to go on medical disability from my...

https://connect.mayoclinic.org/comment/104732/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2018

Comment

Thank you for your comment. I also super from many auto immune disorders. Graves. Endometriosis. Had...

https://connect.mayoclinic.org/comment/1216598/

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Comment

Wow, y’all are so inspiring. I was Diagnosed with Sytemic Amyloidosis AL. It is not a...

https://connect.mayoclinic.org/comment/1058433/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 27, 2024