Blood Cancers & Disorders Support Group

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Comment

Hi @bharty615 Generally, a bone marrow transplant is reserved for extreme conditions such as leukemia, MDS,...

https://connect.mayoclinic.org/comment/1079339/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 2, 2024

Comment

@heimbca Yes, that’s Jakafi. Not for everyone. Wasn’t for me. Felt like it was killing me....

https://connect.mayoclinic.org/comment/1503650/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 12 4:33am

Comment

Hi Lori, Just wanted to update re: husband's upcoming BMT. He is scheduled for a splenectomy...

https://connect.mayoclinic.org/comment/703809/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 29, 2022

Comment

My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...

https://connect.mayoclinic.org/comment/693147/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022

Comment

I am 72 years of age and was also diagnosed with ET in November of 2024....

https://connect.mayoclinic.org/comment/1329859/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

Comment

Initially I was diagnosed with ET. This diagnosis was made based on my high platelets and...

https://connect.mayoclinic.org/comment/1017399/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

Comment

Good morning, @onthejoedock. These are lovely photos of your handsome husband…so active and vital. But the...

https://connect.mayoclinic.org/comment/1082921/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

Comment

Hi, very sorry for delayed response, battled illness not related to PV. I would say both...

https://connect.mayoclinic.org/comment/1459316/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

Comment

Hello @wellness3070, Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you...

https://connect.mayoclinic.org/comment/132602/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Comment

Without knowing I was heading for it my first symptoms were headaches, then pink -red “blotches”...

https://connect.mayoclinic.org/comment/872001/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023