Blood Cancers & Disorders Support Group

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Comment

Knowledge is power. You’ll find the doctors and the medical teams at Mayo are very approachable,...

https://connect.mayoclinic.org/comment/726744/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022

Comment

Hello Bob, so sorry to hear of your wife’s diagnosis. Hopefully her treatment can be performed...

https://connect.mayoclinic.org/comment/88336/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2019

Comment

Hi Susan, I’m sorry to hear you’re also not being heard, and I hope you have...

https://connect.mayoclinic.org/comment/883939/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

Comment

I do think there is more happening with some of us than the research or statistics...

https://connect.mayoclinic.org/comment/1061564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

Comment

Hi, Jill and Board. Back again Not much has changed with me. Except that I have...

https://connect.mayoclinic.org/comment/104706/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2017

Comment

My husband has been diagnosed with cardiac WTTR amyloidosis and AL confirmed by myocardium biopsies,which is...

https://connect.mayoclinic.org/comment/624591/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2021

Comment

Well, Dell, I always try to help. I am 77 (April), and I actually know very...

https://connect.mayoclinic.org/comment/163804/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2017

Comment

Hi Lori thank you for the welcome. I'm a 73 year old male. My journey started...

https://connect.mayoclinic.org/comment/782404/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

I have been having an assortment of apparently unrelated minor symptoms and my PCP is dismissive...

https://connect.mayoclinic.org/comment/1305671/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2025

Comment

I am 68 years old, I have MGUS and arrhythmogenic cardiomyopathy. Recent immunology shows my lambda...

https://connect.mayoclinic.org/comment/1370729/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2025