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815 total results
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Discussions (56)
Comments (759)
Comment
My friend has MDS in the late stages . He is receiving 4-6 units of blood...
https://connect.mayoclinic.org/comment/1120430/
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Discussion:
Myelodysplastic Syndrome (MDS): how to increase red blood cells?
Support Group:
Blood Cancers & Disorders
Posted: Aug 9, 2024
Comment
Yes, we will have an appointment on July 26th and another blood draw before that. I...
https://connect.mayoclinic.org/comment/895259/
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Discussion:
Any survivors of Non-Hodgkin's lymphoma out there?
Support Group:
Blood Cancers & Disorders
Posted: Jul 13, 2023
Comment
I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...
https://connect.mayoclinic.org/comment/256904/
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Discussion:
Medication for JAK2
Support Group:
Blood Cancers & Disorders
Posted: May 31, 2019
Comment
Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...
https://connect.mayoclinic.org/comment/328553/
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Discussion:
JAK2 Mutation, Low Iron and High Platelet count
Support Group:
Blood Cancers & Disorders
Posted: Nov 25, 2020
Comment
My husband has just been diagnosed with MDS after having JAK2 for about ten years. His...
https://connect.mayoclinic.org/comment/1201670/
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Discussion:
MDS and cognitive decline
Support Group:
Blood Cancers & Disorders
Posted: Jan 1 10:12am
Comment
I was diagnosed with MDS last year. My fatigue level never improved. I also have shortness...
https://connect.mayoclinic.org/comment/1249785/
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Discussion:
Living with MDS (Myelodyplastic Syndromes)
Support Group:
Blood Cancers & Disorders
Posted: Mar 3 6:58pm
Comment
Hello, Diagnosed in February 2024. Treatment is INQOVI. I get frequent blood and platelet transfusions. No...
https://connect.mayoclinic.org/comment/1219841/
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Discussion:
Waldenstrom's: Should I take the new medication (rituximab)?
Support Group:
Blood Cancers & Disorders
Posted: Jan 23 2:06pm
Comment
My husband has had degenerative disc disease for years and this year diagnosed with MDS another...
https://connect.mayoclinic.org/comment/910478/
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Discussion:
Anyone dealt with degenerative disk disease with PV diagnosis?
Support Group:
Blood Cancers & Disorders
Posted: Aug 10, 2023
Comment
I have posted before in both areas of MDS and Parkinson’s. Yes my husband has now...
https://connect.mayoclinic.org/comment/1250651/
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Discussion:
Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?
Support Group:
Parkinson's Disease
Posted: Mar 4 9:40pm
Comment
Hi Sherri! It’s been a bit since we’ve chatted. I wanted to drop by this morning...
https://connect.mayoclinic.org/comment/1300929/
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Discussion:
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Support Group:
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: May 10 8:20am
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