Blood Cancers & Disorders Support Group

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Comment

Hello, have just read read posts about sleep apnea. I have had PV with JAK2 for...

https://connect.mayoclinic.org/comment/856718/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Comment

Sorry, I am not aware of EPO. I was originally on Hydroxiria but developed so many...

https://connect.mayoclinic.org/comment/599508/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 5, 2021

Comment

Yea for some reason they never tell you that? I found out also by reading about...

https://connect.mayoclinic.org/comment/1204222/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Comment

Hi all... I am 69 and was diagnosed with ET and some fibrosis so Early PMF...

https://connect.mayoclinic.org/comment/146324/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2021

Comment

@sanjb My story is not as extended as yours, but I was on HU for about...

https://connect.mayoclinic.org/comment/1420086/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Comment

@cathy8 So far I was on HU for about 3 years before I had issues then...

https://connect.mayoclinic.org/comment/1483736/

Discussion: Is anyone involved in clinical trials for ET, specifically for CALR?

Support Group: Blood Cancers & Disorders

Posted: Jan 16 10:00am

Comment

Hi I just joined this group and I was JAK 2 positive also .. my doctor...

https://connect.mayoclinic.org/comment/1350332/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

Comment

My buddy was diagnosed with Myelofibrosis at Mayo a few weeks ago. He will start on...

https://connect.mayoclinic.org/comment/697402/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2022

Comment

I have been diagnosed with the same cancer around Thanksgiving Nov 25’. I was recommended to...

https://connect.mayoclinic.org/comment/1520838/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 6 9:27am

Comment

Hi @bharty615 Generally, a bone marrow transplant is reserved for extreme conditions such as leukemia, MDS,...

https://connect.mayoclinic.org/comment/1079339/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 2, 2024