Blood Cancers & Disorders Support Group

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Comment

My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...

https://connect.mayoclinic.org/comment/1091333/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Comment

Hi @eansgardengirl, Welcome to Mayo Connect. You’ve come to the right place to connect with others...

https://connect.mayoclinic.org/comment/778367/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2022

Comment

I found an article for you that may help explain about the JAK2 gene and how...

https://connect.mayoclinic.org/comment/1142007/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Comment

Hi @mcsulli There are numerous reports released, including from PubMed, regarding the studies on Besremi to...

https://connect.mayoclinic.org/comment/1661535/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Comment

Hi @bshattuck138 It sounds like Becky has found the sweet spot of balance with the HU...

https://connect.mayoclinic.org/comment/1348045/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Comment

Hi @mtnlife, we’re often our own worst enemies when it comes to all things medical. I...

https://connect.mayoclinic.org/comment/791520/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2023

Comment

Hi @dewz13 It’s not unusual for blood numbers to fluctuate when we receive vaccines. Most people...

https://connect.mayoclinic.org/comment/1549508/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 13 9:42am

Comment

Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....

https://connect.mayoclinic.org/comment/1367613/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Comment

Hi Tom, There are quite a few members in the Connect forum who have been diagnosed...

https://connect.mayoclinic.org/comment/1076631/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

Comment

Hi @ladyplumber7 Certainly as a patient you have a right to decide against any treatments or...

https://connect.mayoclinic.org/comment/1642443/

Discussion: Bone marrow biopsy: Was it painful?

Support Group: Blood Cancers & Disorders

Posted: Aug 10 12:14pm

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