Blood Cancers & Disorders Support Group

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Comment

I have been on Pegasys for about 2 years. I have ET Jak2. It brought my...

https://connect.mayoclinic.org/comment/1295459/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 3 6:31am

Comment

Hi @jerrlin. In your case, you have the JAK2 mutation which caused the PV so it’s...

https://connect.mayoclinic.org/comment/870946/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Comment

Hello @lindaw123 I appreciate this thoughtful question. I did some research online and found the results...

https://connect.mayoclinic.org/comment/662346/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Comment

"JAK 2 positive result only attributes to a 7% chance that it is the cause of...

https://connect.mayoclinic.org/comment/1281109/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 4:14pm

Comment

Hi group, I had a Jak2 that came back positive. From what I understand anything over...

https://connect.mayoclinic.org/comment/1140546/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2024

Comment

Hi @dale1k I am amazed at your high dose of HU since you say your RBC...

https://connect.mayoclinic.org/comment/1078783/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2024

Comment

With higher platelet numbers you are putting yourself at a higher risk of pulmonary embolisms. From...

https://connect.mayoclinic.org/comment/869593/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Comment

Hello Tresman10.......my name is Claire and I have jak2, ET and MPN. I have been on...

https://connect.mayoclinic.org/comment/310848/

Discussion: Husband has Essential Thrombocythemia (ET) & MCI

Support Group: Caregivers: Dementia

Posted: May 15, 2020

Comment

Wendy, physicians consider a number of factors when diagnosing PV because most diagnostic tests are not...

https://connect.mayoclinic.org/comment/890629/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

I have Polycythemia Vera Jak2. I all of a sudden have my platelets go up and...

https://connect.mayoclinic.org/comment/1087185/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024