Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

989 total results

Comment

No, it was not mentioned. I did have three different blood tests done which showed I...

https://connect.mayoclinic.org/comment/827610/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Comment

Yes, my naturopath has me on Nattokinese, it’s similar but different. He works w/my heme doc....

https://connect.mayoclinic.org/comment/1017850/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18 9:16am

Comment

I didn’t get diagnosed with JAK2 and PV (2022)until a year after a hysterectomy (2021). (They...

https://connect.mayoclinic.org/comment/763289/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Comment

Sorry, "driver mutation" just refers to the mutation you have that causes the ET. You are...

https://connect.mayoclinic.org/comment/781585/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

Comment

I also had PCV dx and was already taking a blood anti coagulant(xarelto) and baby aspirin...

https://connect.mayoclinic.org/comment/1086296/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13 2:10pm

Comment

My very active 82 year old father just got diagnosed with JAK2 positive, high white count...

https://connect.mayoclinic.org/comment/859841/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Comment

Cindy1209-- Met with the Dr 4/18 and still at a loss- waiting for the results of...

https://connect.mayoclinic.org/comment/846151/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Comment

My PCP in rural Mississippi urged me to see a hematologist when my CBC on routine...

https://connect.mayoclinic.org/comment/1087613/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 16 6:40am

Comment

Hi there, I also have ET & JAK2 but with no symptoms other than high platelets....

https://connect.mayoclinic.org/comment/257506/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2019

Comment

Welcome to the club! I, too, am cold intolerant and have Reynaulds (which mayor may not...

https://connect.mayoclinic.org/comment/855393/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023