Blood Cancers & Disorders Support Group

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Comment

Same thing happened to me. I was diagnosed with low risk MDS in 2017. My platelets...

https://connect.mayoclinic.org/comment/909755/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

Comment

I was on Revlimid for MDS and it about did me in. I was so weak...

https://connect.mayoclinic.org/comment/794489/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

Comment

That’s excellent news! There have been so many positive changes in the advancement for treating MDS...

https://connect.mayoclinic.org/comment/1250925/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Comment

I am on my 11th cycle of viadaza and ventoclox with astounding results. Hemoglobin has lingered...

https://connect.mayoclinic.org/comment/1171184/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024

Comment

Hi @njjwjj Welcome to Connect. It’s very encouraging to hear that the Vidaza (Azacitidine) treatment you’re...

https://connect.mayoclinic.org/comment/952899/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

Comment

Diet and ling term goals on recovery. I am going through similar with MDS and you...

https://connect.mayoclinic.org/comment/1410573/

Discussion: Life Expectancy of MDS-1 Patients

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2025

Comment

Hi @kally38 and welcome to Connect. You’re right, 70 is still young! I just turned 70...

https://connect.mayoclinic.org/comment/1027929/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 5, 2024

Comment

My husband was diagnosed with MDS in Dec 2023. Labs are declining. Just found a donor....

https://connect.mayoclinic.org/comment/1054559/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Comment

I've had 6 Biopsy (in pelvic) over 10 months. MDS went to AML with 26% blasts...

https://connect.mayoclinic.org/comment/1172761/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2024

Comment

Hello--my last bone-marrow biopsy was very promising--white cells coming back and no blasts. Now I am...

https://connect.mayoclinic.org/comment/856598/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023