Blood Cancers & Disorders Support Group

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Comment

Hi just wondering if anyone with MDS has experienced rash on face and neck. I have...

https://connect.mayoclinic.org/comment/948726/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

Comment

Yes, i'm dealing with JAK 2 mutation, had a biopsy which confirmed MDS/MPN syndrome. I take...

https://connect.mayoclinic.org/comment/777367/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

Comment

With your MDS you aren’t able to produce enough red blood cells. Aransep, developed for patients...

https://connect.mayoclinic.org/comment/1071684/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

Comment

I had bloodwork yesterday, and my red and white cells are in the normal range, but...

https://connect.mayoclinic.org/comment/1146970/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Comment

I am feeling well. A little tired, but that seems to be a common side effect...

https://connect.mayoclinic.org/comment/1180958/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

Comment

Hi @barbwsm We’re all new at this at some point. I see you’ve been a member...

https://connect.mayoclinic.org/comment/1098504/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Comment

Hi @gothman. It’s been several months since our last conversation and I wanted to check in...

https://connect.mayoclinic.org/comment/1266769/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25 5:30pm

Comment

I have had afib for fifty years and was diagnosed last year for pv. Cardiologists and...

https://connect.mayoclinic.org/comment/770824/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

Comment

Good morning, @tyson1221 I know you’re anxious to get a diagnosis because of your low blood...

https://connect.mayoclinic.org/comment/807507/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Comment

Aransep for MDS not anemia. Since beginning of diagnosis. Keeps HGB up to 10 if possible....

https://connect.mayoclinic.org/comment/1071677/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024