Blood Cancers & Disorders Support Group

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Comment

After two weeks on one pill of HU my eGFR went from 82 to 52. Has...

https://connect.mayoclinic.org/comment/826035/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

Hello , I have been treated for PV/ JAK2 for four years . I was on...

https://connect.mayoclinic.org/comment/773685/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

Comment

Thank you for this information. I will pass this along to my son. I recently found...

https://connect.mayoclinic.org/comment/252005/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Comment

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Comment

Hi Sarah, you haven’t posted an update and I was wondering if you’ve had any news...

https://connect.mayoclinic.org/comment/873122/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Comment

I also have ET JAK2. I am taking Hydroxyurea. I do not take aspirin because I...

https://connect.mayoclinic.org/comment/1017787/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

Comment

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

Comment

@jackiecarey I am 68 and have had 3 TIAs. I just received my lab work results...

https://connect.mayoclinic.org/comment/1505954/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 6:45pm

Comment

I was diagnosed with Essential Thrombocytopemia at the VA Hospital based on a platelet count of...

https://connect.mayoclinic.org/comment/252016/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2019

Comment

Hi John, My name is Debbie. I was just diagnosed with CEL IN December 2023. I...

https://connect.mayoclinic.org/comment/997143/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

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