Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
989 total results
All
Discussions (64)
Comments (925)
Comment
I'm so sorry your mom is dealing with MF. Guessing she has the CALR or MPL...
https://connect.mayoclinic.org/comment/1069688/
Copy link to clipboard
Discussion:
Essential thrombocythemia
Support Group:
Blood Cancers & Disorders
Posted: May 17 1:54pm
Comment
Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...
https://connect.mayoclinic.org/comment/194318/
Copy link to clipboard
Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Jul 19, 2019
Comment
I was diagnosed 3 years ago with secondary (non cancerous) PV. I do not have the...
https://connect.mayoclinic.org/comment/870096/
Copy link to clipboard
Discussion:
PV and fatigue
Support Group:
Blood Cancers & Disorders
Posted: May 31, 2023
Comment
I am sorry you are going through so many issues. Since you are positive for JAK2...
https://connect.mayoclinic.org/comment/836053/
Copy link to clipboard
Discussion:
Blood Cancer - JAK2 - Autoimmune- Confusion
Support Group:
Blood Cancers & Disorders
Posted: Apr 2, 2023
Comment
I’ve seen many who get there numbers down in the 500’s and are ok with that....
https://connect.mayoclinic.org/comment/764541/
Copy link to clipboard
Discussion:
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Support Group:
Blood Cancers & Disorders
Posted: Oct 23, 2022
Comment
When I first started with ET JAK2 in 2022 I was given 500 mg HU daily....
https://connect.mayoclinic.org/comment/1180620/
Copy link to clipboard
Discussion:
Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?
Support Group:
Blood Cancers & Disorders
Posted: Nov 27 7:20am
Comment
My son is almost 47 and has been dealing with high platelet count 750,000 for about...
https://connect.mayoclinic.org/comment/194300/
Copy link to clipboard
Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Apr 5, 2019
Comment
Are you by chance taking testosterone, either by injection or a topical preparation? Polycythemia (but not...
https://connect.mayoclinic.org/comment/784089/
Copy link to clipboard
Discussion:
Polycythemia Vera - Help getting Diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Dec 12, 2022
Comment
I’m wondering who tried the keto diet and how it worked. I started keto a year...
https://connect.mayoclinic.org/comment/775370/
Copy link to clipboard
Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Nov 20, 2022
Comment
Just because you have the JAK2 mutation it doesn't mean you cannot have other gene mutations....
https://connect.mayoclinic.org/comment/194366/
Copy link to clipboard
Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Feb 26, 2020
First
Previous
...
21
22
23
24
25
26
27
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect