Blood Cancers & Disorders Support Group

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Comment

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

Comment

Hello @bob100, I’m truly sorry to hear about your wife’s diagnosis, but I also quickly want...

https://connect.mayoclinic.org/comment/88315/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Comment

I was quite healthy until I suddenly started getting short of breath when I exercised 12...

https://connect.mayoclinic.org/comment/1062971/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

Comment

Hello @soonerfan, How did your appointment on the 29th of March turn out? Were you able...

https://connect.mayoclinic.org/comment/1048610/

Discussion: Does any one have HOCM & Systemic Amyloidosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 10, 2024

Comment

This is interesting, and potentially very helpful. The real point is that if you feel the...

https://connect.mayoclinic.org/comment/900332/

Discussion: Possible Al Amylodiois

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

Comment

To follow up on my post 3 days ago. I am the 70-year-old that was diagnosed...

https://connect.mayoclinic.org/comment/1250436/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025

Comment

Oh, thank you! I'll check that out. I'm scheduled for Dec. 1. Am sick with COVID...

https://connect.mayoclinic.org/comment/969673/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Comment

Hi there ChefT, thank you kindly for your reply :) I have been concerned about amyloidosis,...

https://connect.mayoclinic.org/comment/883702/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

Comment

I was diagnosed in 2021 by Stanford Amyloid Center. They recommended the regimen called dara-CyBorD and...

https://connect.mayoclinic.org/comment/1519050/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 11:37pm

Comment

Colleen, thanks for the link. I did a lot of reading and realized one sad fact....

https://connect.mayoclinic.org/comment/738604/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022