Blood Cancers & Disorders Support Group

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Comment

Hi. Your case sounds similar to mine. I was diagnosed 3 years ago. I take 500mg...

https://connect.mayoclinic.org/comment/1515821/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 27 11:36am

Comment

I started a little over a year ago w/500 mg/day 6 days/week. I have hot flashes...

https://connect.mayoclinic.org/comment/1105077/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

Comment

About 6 months ago I was diagnosed with Sezary Syndrome, a rare form of T-Cell Lymphoma....

https://connect.mayoclinic.org/comment/871156/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Comment

I take Desloratadine, an antihistamine for the itching and it works great. For dry skin on...

https://connect.mayoclinic.org/comment/1205154/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2025

Comment

I’m sorry to hear about your mom’s problems with itching. I’ve had some issues with itching...

https://connect.mayoclinic.org/comment/744293/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Sep 1, 2022

Comment

Really glad to hear you were diagnosed before having a stroke or heart attack I, too,...

https://connect.mayoclinic.org/comment/1374970/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

Comment

Can I ask what level of dosage y’all that are posting here are on? I’ve been...

https://connect.mayoclinic.org/comment/1356957/

Discussion: Can I take Hydroxyurea in a dab of applesauce?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

Comment

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Comment

Yes, that’s exactly what I did. For two years, I had uncontrollable itching and no other...

https://connect.mayoclinic.org/comment/876352/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Comment

Hi @jacklyn, Well shucks, those weren’t the results you were hoping for with the blood work....

https://connect.mayoclinic.org/comment/1336129/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025