Blood Cancers & Disorders Support Group

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Comment

Hi @katytx, if you use the group search function, you will find many discussions and members...

https://connect.mayoclinic.org/comment/1231574/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

Comment

Hi newwaldenguy. Yes, I recently found I have Waldenstrom and 2 of the 3 doctors I...

https://connect.mayoclinic.org/comment/1231022/

Discussion: Anyone have zanubrutinib/Brukinsa denied?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

Comment

I am sorry to read that your levels indicate the need for plasmapheresis due to hyperviscosity...

https://connect.mayoclinic.org/comment/1201340/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

Comment

A year ago he told me that he didn’t think the MGUS would progress to Waldenstrom’s...

https://connect.mayoclinic.org/comment/1179842/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

Comment

I have been taking Brukinsa for 3 months as treatment for Waldenstrom's Macroglobulinemia and noticed some...

https://connect.mayoclinic.org/comment/1149136/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Comment

Hello everyone. I was diagnosed with WM in February of 2023 at the VA Medical Center...

https://connect.mayoclinic.org/comment/1074718/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Comment

Welcome, @cpu. I moved your question about Waldenstrom macroglobulinemia (WM) to this existing discussion: - Waldenstrom...

https://connect.mayoclinic.org/comment/1070292/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

Comment

Hi there, I was diagnosed with MGUS back in 2017 after decades of dealing with polyneuropathy...

https://connect.mayoclinic.org/comment/1062642/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Comment

I was recently diagnosed with a rare blood cancer called Waldenstrom's Macroglobulinemia (aka: Lymphoplasmacytic Lymphoma). I've...

https://connect.mayoclinic.org/comment/1062621/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Comment

I was diagnosed with Waldenström's while a neurologist at a university teaching hospital who was looking...

https://connect.mayoclinic.org/comment/1026664/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024